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Published literature

Publications

Published children's palliative care research: browsable, searchable and filterable by the same taxonomy as researchers, groups and guides.

This library is curated by The Siden Research Team as part of the TRENDS in Pediatric Palliative Care newsletter and library. Learn more about TRENDS and The Siden Research Team and subscribe to read their monthly expert commentaries on their website.

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Showing 151–163 of 163 publications

Opportunities for Palliative Care in Public Health
De Lima L, Pastrana T · Annu Rev Public Health · 2016 · DOI: 10.1146/annurev-publhealth-032315-021448
In May 2014, the World Health Assembly, of the World Health Organization (WHO), unanimously adopted a palliative care (PC) resolution, which outlines clear recommendations to the United Nations member states, such as including PC in national health policies an…
GlobalCare ModelsCommunityEnd of Life CareHealth PolicyPublic HealthReview/Synthesis
Patterns of palliative care service consultation in a sample of critically ill ICU patients at high risk of dying
Seaman J, Barnato A, Sereika S, Happ M, Erlen J · PLoS Negl Trop Dis. · 2016
The AmericasUnited States of AmericaEnd of Life CareIntensive CareQuality of CareQuantitative
Place of death in children and young people with cancer and implications for end of life care: A population-based study in England, 1993-2014
Gao W, Verne J, Peacock J, Stiller C, Wells C, Greenough A, Higginson I · BMC Cancer · 2016 · DOI: 10.1186/s12885-016-2695-1
Background: Efforts to improve end of life care (EoLC) have made tangible impacts on care in adults, including enabling more people to die at their preferred place of death (PoD), usually home or hospices. Little is known how the PoD in children and young peop…
End of Life CareOncologyQuantitative
When Technology Fails: Community-Based Pediatric Hospice
Ryan J, Haas K, Kramer N, Vizzachero N, Butler S, Waechtler E · Journal of Pediatric Nursing · 2016 · DOI: 10.1016/j.pedn.2016.02.008
The AmericasUnited States of AmericaCare ModelsCommunityEnd of Life CareReview/Synthesis
Caring decisions: The development of a written resource for parents facing end-of-life decisions
Xafis V, Gillam L, Hynson J, Sullivan J, Cossich M, Wilkinson D · Journal of Palliative Medicine · 2015 · DOI: 10.1089/jpm.2015.0048
Western PacificAustraliaDecision-makingEnd of Life CareParents/CaregiversImplementation scienceMixed methods
Counseling for personal care options at neonatal end of life: A quantitative and qualitative parent survey Psychosocial
Shelkowitz E, Vessella S, O'Reilly P, Tucker R, Lechner B · BMC Palliative Care · 2015 · DOI: 10.1186/s12904-015-0063-6
The AmericasUnited States of AmericaDeath and DyingEnd of Life CareGrief & bereavementParents/CaregiversPeri/neonatal palliative careMixed methods
End-of-life practices among tertiary care PICUs in the United States: A multicenter study
Meert K, Keele L, Morrison W, Berg R, Dalton H, Newth C, Harrison R, Wessel D, Shanley T, Carcillo J, Clark A, Holubkov R, Jenkins T, Doctor A, Dean J, Pollack M · Pediatric Critical Care Medicine · 2015 · DOI: 10.1097/PCC.0000000000000520
The AmericasUnited States of AmericaEnd of Life CareIntensive CareQuantitative
Hospital use in the last year of life for children with life-threatening complex chronic conditions
Ananth P, Melvin P, Feudtner C, Wolfe J, Berry J · Pediatrics · 2015 · DOI: 10.1542/peds.2015-0260
The AmericasUnited States of AmericaChildren with Medical ComplexityEnd of Life CareQuantitative
Paediatric palliative care: Recommendations for treatment of symptoms in the Netherlands Palliative care in other conditions
Knops R, Kremer L, Verhagen A · BMC Palliative Care · 2015 · DOI: 10.1186/s12904-015-0054-7
EuropeNetherlandsEnd of Life CarePain & symptom managementReview/Synthesis
The relationship between the nursing environment and delivering culturally sensitive perinatal hospice care
Mixer S, Lindley L, Wallace H, Fornehed M, Wool C · International Journal of Palliative Nursing · 2015 · DOI: 10.12968/ijpn.2015.21.9.423
BACKGROUND: Wide variations exist among perinatal hospices, and barriers to perinatal palliative care exist at the healthcare level. Research in the area of culturally sensitive perinatal palliative care has been scarce, a gap which this study addresses. OBJEC…
United States of AmericaEnd of Life CarePeri/neonatal palliative carePrimary Care
What information do parents need when facing end-of-life decisions for their child? A meta-synthesis of parental feedback
Xafis V, Wilkinson D, Sullivan J · BMC palliative care · 2015 · DOI: 10.1186/s12904-015-0024-0
GlobalDecision-makingEnd of Life CareParents/CaregiversReview/Synthesis
Approaches to end-of-life discussions with parents of a profoundly compromised newborn
Paris J, Pai V, Cummings B, Batten J, Benitz W · Journal of Perinatology · 1078 · DOI: 10.1038/jp.2017.77
The AmericasUnited States of AmericaCommunicationEnd of Life CareParents/CaregiversPeri/neonatal palliative care
Pediatric End-of-life Care Barriers and Facilitators: Perception of
Khraisat O, Alakour N, O'Neill T · Indian Journal of Palliative Care (INDIAN J PALLIAT CARE), 199-206 · DOI: 10.4103/0973-1075.204232
Introduction: End-of-life care is a critical issue for pediatric
Eastern MediterraneanJordanAccess to CareEnd of Life CareNursingQualitative
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