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Published literature

Publications

Published children's palliative care research: browsable, searchable and filterable by the same taxonomy as researchers, groups and guides.

This library is curated by The Siden Research Team as part of the TRENDS in Pediatric Palliative Care newsletter and library. Learn more about TRENDS and The Siden Research Team and subscribe to read their monthly expert commentaries on their website.

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Showing 1–20 of 20 publications

Current situation, challenges and future trends of pediatric palliative care from a multi-dimensional perspective: a narrative review
Lv D, Li Y, Chen X, Bao Y · Translational Pediatrics · 2026 · DOI: 10.21037/tp-2026-0343
Background and Objective: Pediatric palliative care (PPC) provides holistic support for children and adolescents with life-threatening or life-limiting conditions and their families. This narrative review summarizes PPC concepts, current service models, key im…
Western PacificChinaAdolescents & Young AdultsCare ModelsReview/Synthesis
Organization of pediatric palliative care in health systems around the world: a systematic review
Menegussi J, Oliveira L, Costa K, Ogata M · Interface-Comunicação, Saúde, Educação · 2026
GlobalCare ModelsReview/Synthesis
Perinatal and Neonatal Palliative Care: Challenges and Contextual Solutions in Low- and Middle-Income Countries
Beykmirza R, Rassouli M, Babaie M · Journal of Perinatal and Neonatal Nursing · 2026 · DOI: 10.1097/JPN.0000000000001009
ABSTRACT - Purpose: - The purpose of this review was to explore the primary obstacles to providing comprehensive, family-centered palliative care during the perinatal and neonatal period, using insights from existing literature and clinical practice. Backgroun…
Eastern MediterraneanIranCare ModelsPeri/neonatal palliative careReview/Synthesis
Embracing paediatric palliative care in paediatric oncology from diagnosis onwards
Lacerda A, Martínez M, Dumont B, Leiss U, Kokkinou G, Scheinemann K, Craig F · Pediatr Blood Cancer · 2023 · DOI: 10.1002/pbc.30561
Paediatric palliative care aims to support children and young people with life-limiting or life-threatening conditions, and their families, from the time of diagnosis. Early integration within oncology has been recognised as having benefits for all involved, w…
Care Models
Fifteen years of shared care for paediatric oncology, haematology and palliative patients across Queensland: The role of Regional Case Managers
Slater P, Hastings Y, Nicholson J, Noyes M, Benitez L, Pollock K, Peacock R, Cox A, Gunning R, Caris K, Petersen D, Henry C, Spanner R, Beckett K, Chisholm C · The Australian journal of rural health · 2023 · DOI: 10.1111/ajr.12958
Western PacificAustraliaCare ModelsHaematologyOncologyMixed methods
From Pediatric to Adult Palliative Care Service: The Continuity of Care
Ronchi L, Paone G, Mazzoni E, Donati C, Mengoli F, Amarri S, Valenti D · Palliative Medicine · 2022
Background/aims: Define a gradual transition from pediatric to adult palliative care able to support adolescent patients (pts) with chronic and progressive diseases and their family.
The AmericasCanadaCare Models
Independent hospices for children and young people; Hospices North East
Brown A, Newton J, Nicholson C, Fearing A, Gordon S, Wood P, Egdell A, McKean M, Ellam J · Archives of Disease in Childhood · 2021 · DOI: 10.1136/archdischild-2019-317861
EuropeUnited KingdomCare ModelsEnd of Life CareQuantitative
Recommendations for speech-language pathologists in paediatric palliative care teams (ReSP3CT): An international modified Delphi study
Krikheli L, Carey L, Erickson S, Carey-Sargeant C, Ann Mathisen B · International journal of speech-language pathology · 2021 · DOI: 10.1080/17549507.2020.1866073
Purpose: There is emerging recognition within the literature that speech-language pathologists (SLPs) have a role in the provision of paediatric palliative care (PPC). SLPs, however, experience unique challenges when working with this vulnerable young cohort o…
GlobalAllied Health ServicesCare ModelsQuantitativeReview/Synthesis
Pediatric Palliative Telehealth Care from Hospital to Hospital: A Pilot Project (QI653)
Evan E, Sandesara A, Mock K · Journal of Pain and Symptom Management · 2020 · DOI: 10.1016/j.jpainsymman.2019.12.262
Objectives: * Explain a novel method for creating pediatric palliative care resources using telehealth technology. * Describe preliminary data demonstrating project feasibility and satisfaction.
The AmericasUnited States of AmericaCare ModelsPrimary CareTechnologyIntervention EvaluationQuantitative
Growing Symbiotic Local Partnerships to Nurture Quality Pediatric Hospice Care in Rural Regions: Companion Planting
Weaver M · JAMA Pediatr · 2018 · DOI: 10.1001/jamapediatrics.2017.3910
The AmericasUnited States of AmericaCare ModelsCommunityEnd of Life Care
High-risk communication at the time of hospice enrollment: Standardizing pediatric hospital to hospice sign out
Brock K, Mullaney E · Pediatr Blood Cancer · 2018 · DOI: 10.1002/pbc.26957
The AmericasUnited States of AmericaCare ModelsCommunicationEnd of Life Care
Aligning guidelines and medical practice: Literature review on pediatric palliative care guidelines
De Clercq E, Rost M, Pacurari N, Elger B, Wangmo T · Palliative and Supportive Care · 2017 · DOI: 10.1017/S1478951516000882
GlobalCare ModelsReview/Synthesis
A Proposed Model for Perinatal Palliative Care
Cole J, Moldenhauer J, Jones T, Shaughnessy E, Zarrin H, Coursey A, Munson D · J Obstet Gynecol Neonatal Nurs · 2017
The AmericasUnited States of AmericaCare ModelsPeri/neonatal palliative care
Opportunities for Palliative Care in Public Health
De Lima L, Pastrana T · Annu Rev Public Health · 2016 · DOI: 10.1146/annurev-publhealth-032315-021448
In May 2014, the World Health Assembly, of the World Health Organization (WHO), unanimously adopted a palliative care (PC) resolution, which outlines clear recommendations to the United Nations member states, such as including PC in national health policies an…
GlobalCare ModelsCommunityEnd of Life CareHealth PolicyPublic HealthReview/Synthesis
Pop Up: A new model of paediatric palliative care
Mherekumombe M, Frost J, Hanson S, Shepherd E, Collins J · J Paediatr Child Health · 2016 · DOI: 10.1111/jpc.13276
Western PacificAustraliaCare Models
Respite services for children with life-limiting conditions and their families in Ireland
Hill K · Nursing Children and Young People · 2016 · DOI: 10.7748/ncyp.2016.e658
EuropeIrelandCare ModelsParents/Caregivers
Succession planning in children's palliative care services
Dickson G · Palliative Medicine · 2016
The children's palliative care sector requires a specific set of knowledge and skills in its workforce. Maintaining high levels of competence and leadership can be challenging if staff move out of the sector, retire or several key people leave. Succession plan…
EuropeUnited KingdomCare Models
When Technology Fails: Community-Based Pediatric Hospice
Ryan J, Haas K, Kramer N, Vizzachero N, Butler S, Waechtler E · Journal of Pediatric Nursing · 2016 · DOI: 10.1016/j.pedn.2016.02.008
The AmericasUnited States of AmericaCare ModelsCommunityEnd of Life CareReview/Synthesis
Volunteer activity in specialist paediatric palliative care: a national survey
Burbeck R, Low J, Sampson E, Scott R, Bravery R, Candy B · BMJ supportive & palliative care · 2015 · DOI: 10.1136/bmjspcare-2012-000355
EuropeUnited KingdomCare ModelsPsychosocial CareQuantitative
A pilot study of the effectiveness of home teleconsultations in paediatric palliative care
Bradford N, Young J, Armfield N, Bensink M, Pedersen L, Herbert A, Smith A · Journal of Telemedicine & Telecare · 2012
We conducted a pilot study to investigate the effectiveness of a home telehealth service for paediatric palliative care consultations. Over a 10 week period, 14 of the 17 caregivers approached to be part of the study agreed to participate. Families were alloca…
Western PacificAustraliaCare ModelsCommunityParents/CaregiversTechnologyIntervention EvaluationQuantitative