Published literature
Publications
Published children's palliative care research: browsable, searchable and filterable by the same taxonomy as researchers, groups and guides.
This library is curated by The Siden Research Team as part of the TRENDS in Pediatric Palliative Care newsletter and library. Learn more about TRENDS and The Siden Research Team and subscribe to read their monthly expert commentaries on their website.
Showing 126–150 of 165 publications
What do transplant physicians think about palliative care? A national survey study
Background: Palliative care (PC) has been shown to improve quality of life, symptom burden, and mood in patients with advanced solid tumors as well as those with hematologic malignancies undergoing hematopoietic stem cell transplantation (HSCT). Despite these …
Advancing a comprehensive cancer care agenda for children and their families: Institute of Medicine Workshop highlights and next steps
This article highlights key findings from the "Comprehensive Cancer Care for Children and Their Families" March 2015 joint workshop by the Institute of Medicine (IOM) and the American Cancer Society. This initiative convened more than 100 family members, clini…
A Survey of Perinatal Palliative Care Programs in the United States: Structure, Processes, and Outcomes
Background: Perinatal palliative care (PPC) programs are proliferating nationwide, but little is known about their structure, process, or desired outcomes, to inform future program development. Objective: To explicate structure, processes, and outcomes of PPC …
End-of-Life Care for Hispanic Children: A Study of California Medicaid Beneficiaries
INTRODUCTION: More than 8,000 Hispanic children die annually in the United States; yet little is known about the end-of-life care utilized. The purpose of this study was to examine the children and family characteristics associated with end-of-life care for Hi…
In what circumstances will a neonatologist decide a patient is not a resuscitation candidate?
OBJECTIVE: The purpose of this study was to determine the opinions of practising neonatologists regarding the ethical permissibility of unilateral Do Not Attempt Resuscitation (DNAR) decisions in the neonatal intensive care unit. STUDY DESIGN: An anonymous sur…
Neonatal Death in the Emergency Department: When End-of-Life Care Is Needed at the Beginning of Life
The death of a neonate is devastating for all involved. Each year, critically ill neonates present to emergency departments across the United States. These infants require acute medical interventions with a goal of stabilization. Despite these efforts, hundred…
Participation in a clinical trial for a child with cancer is burdensome for a minority of children
Aim: This study explored how parents who had lost a child to cancer felt about them taking part in a clinical trial. Methods: A retrospective questionnaire was sent to parents who had lost a child to cancer. They were asked whether their child took part in a c…
What are the limits of parental authority? Pediatric bioethics and the law
Objectives * Distinguish between the "best interest standard" and "the harm principle" in the evaluation of familial medical decision making in pediatrics and analyze the strengths and weaknesses of each. * Identify key legal cases in pediatrics and explain th…