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Published literature

Publications

Published children's palliative care research: browsable, searchable and filterable by the same taxonomy as researchers, groups and guides.

This library is curated by The Siden Research Team as part of the TRENDS in Pediatric Palliative Care newsletter and library. Learn more about TRENDS and The Siden Research Team and subscribe to read their monthly expert commentaries on their website.

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Showing 26–43 of 43 publications

Can the Ethical Best Practice of Shared Decision-Making lead to Moral Distress?
Prentice T, Gillam L · Journal of bioethical inquiry · 2018 · DOI: 10.1007/s11673-018-9847-8
When healthcare professionals feel constrained from acting in a patient's best interests, moral distress ensues. The resulting negative sequelae of burnout, poor retention rates, and ultimately poor patient care are well recognized across healthcare providers.…
Clinician WellbeingDecision-makingEthicsReview/Synthesis
Information needs of young people with cerebral palsy and their families during the transition to adulthood: a scoping review
Matthew F, Debra S, Cunningham Charles E, Willem G · Journal of Transition Medicine · 2018 · DOI: 10.1515/jtm-2018-0003
The transition to adulthood is a developmental phase which occurs as young people move from adolescence into adulthood. Young people with disabilities, including cerebral palsy (CP), and their families have reported challenges during the transition to adulthoo…
GlobalAdolescents & Young AdultsNeurologyReview/Synthesis
Advanced analyses of physiological signals in the neonatal intensive care unit
Huvanandana J, Thamrin C, Tracy M, Hinder M, Nguyen C, McEwan A · Physiol Meas · 2017 · DOI: 10.1088/1361-6579/aa8a13
Western PacificAustraliaIntensive CarePeri/neonatal palliative careReview/Synthesis
Aligning guidelines and medical practice: Literature review on pediatric palliative care guidelines
De Clercq E, Rost M, Pacurari N, Elger B, Wangmo T · Palliative and Supportive Care · 2017 · DOI: 10.1017/S1478951516000882
GlobalCare ModelsReview/Synthesis
A Mind-Body Approach to Pediatric Pain Management
Brown M, Rojas E, Gouda S · Children · 2017 · DOI: 10.3390/children4060050
The AmericasUnited States of AmericaIntegrative MedicinePain & symptom managementReview/Synthesis
The under reporting of recruitment strategies in research with children with life-threatening illnesses: A systematic review
Hudson B, Oostendorp L, Candy B, Vickerstaff V, Jones L, Lakhanpaul M, Bluebond-Langner M, Stone P · Palliative Medicine · 2017 · DOI: 10.1177/0269216316663856
GlobalResearch in CPCReview/Synthesis
Transitional Objects to Faciliate Grieving Following Perinatal Loss
LeDuff 3, Bradshaw W, Blake S · Adv Neonatal Care · 2017 · DOI: 10.1097/anc.0000000000000429
The AmericasUnited States of AmericaGrief & bereavementPeri/neonatal palliative careReview/Synthesis
Opportunities for Palliative Care in Public Health
De Lima L, Pastrana T · Annu Rev Public Health · 2016 · DOI: 10.1146/annurev-publhealth-032315-021448
In May 2014, the World Health Assembly, of the World Health Organization (WHO), unanimously adopted a palliative care (PC) resolution, which outlines clear recommendations to the United Nations member states, such as including PC in national health policies an…
GlobalCare ModelsCommunityEnd of Life CareHealth PolicyPublic HealthReview/Synthesis
Predictors of Care Gaps in Adolescents With Complex Chronic Condition Transitioning to Adulthood
Goossens E, Bovijn L, Gewillig M, Budts W, Moons P · Am J Obstet Gynecol. · 2016
GlobalAccess to CareAdolescents & Young AdultsChildren with Medical ComplexityReview/Synthesis
The AAP Resilience in the Face of Grief and Loss Curriculum
Serwint J, Bostwick S, Burke A, Church A, Gogo A, Hofkosh D, King M, Linebarger J, McCabe M, Moon M, Osta A, Rana D, Sahler O, Smith K, Rivera F, Baldwin C · Pediatrics. · 2016
The AmericasUnited States of AmericaEducation & TrainingGrief & bereavementReview/Synthesis
What are the limits of parental authority? Pediatric bioethics and the law
Johnson L, Steuer K, Campbell A, Baker J · Journal of Pain and Symptom Management · 2016
Objectives * Distinguish between the "best interest standard" and "the harm principle" in the evaluation of familial medical decision making in pediatrics and analyze the strengths and weaknesses of each. * Identify key legal cases in pediatrics and explain th…
The AmericasUnited States of AmericaDecision-makingEthicsParents/CaregiversReview/Synthesis
When Technology Fails: Community-Based Pediatric Hospice
Ryan J, Haas K, Kramer N, Vizzachero N, Butler S, Waechtler E · Journal of Pediatric Nursing · 2016 · DOI: 10.1016/j.pedn.2016.02.008
The AmericasUnited States of AmericaCare ModelsCommunityEnd of Life CareReview/Synthesis
Paediatric palliative care: Recommendations for treatment of symptoms in the Netherlands Palliative care in other conditions
Knops R, Kremer L, Verhagen A · BMC Palliative Care · 2015 · DOI: 10.1186/s12904-015-0054-7
EuropeNetherlandsEnd of Life CarePain & symptom managementReview/Synthesis
What information do parents need when facing end-of-life decisions for their child? A meta-synthesis of parental feedback
Xafis V, Wilkinson D, Sullivan J · BMC palliative care · 2015 · DOI: 10.1186/s12904-015-0024-0
GlobalDecision-makingEnd of Life CareParents/CaregiversReview/Synthesis
Inclusion of children with disabilities in mainstream child development research
Feldman M, M. B, A. S, and Luckasson R · Disability & Society · 2012 · DOI: 10.1080/09687599.2012.748647
This study investigated whether children with disabilities are excluded from mainstream child development research. Fifteen per cent of 533 articles from Child Development and Developmental Psychology (1996?2010) were randomly selected. The exclusion rate was …
GlobalResearch in CPCReview/Synthesis
Effectively using communication to enhance the provision of pediatric palliative care in an acute care setting
Hubble R, Trowbridge K, Hubbard C, Ahsens L, Ward-Smith P · Journal of Multidisciplinary Healthcare · 2008 · DOI: 10.2147/JMDH.S3854
The AmericasUnited States of AmericaCommunicationReview/Synthesis
Pain in children
Finley G · Pain Research and Management · 2006
The AmericasCanadaPain & symptom managementReview/Synthesis
Family caregiving for persons with heart failure at the intersection of heart failure and palliative care: a state-of-the-science review
Nicholas Dionne-Odom J, Hooker S, Bekelman D, Ejem D, McGhan G, Kitko L, Str�mberg A, Wells R, Astin M, Metin Z, Mancarella G, Pamboukian S, Evangelista L, Buck H, Bakitas M, Hooker S, Metin Z, Pamboukian S, Buck H · Heart Failure Reviews · DOI: 10.1007/s10741-017-9597-4
Many of the 23 million individuals with heart failure (HF) worldwide receive daily, unpaid support from a family member or friend. Although HF and palliative care practice guidelines stipulate that support be provided to family caregivers, the evidence base to…
GlobalCardiologyParents/CaregiversReview/Synthesis
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