Published literature
Publications
Published children's palliative care research: browsable, searchable and filterable by the same taxonomy as researchers, groups and guides.
This library is curated by The Siden Research Team as part of the TRENDS in Pediatric Palliative Care newsletter and library. Learn more about TRENDS and The Siden Research Team and subscribe to read their monthly expert commentaries on their website.
Showing 426–450 of 4332 publications
Development of an Interprofessional Clinician Training in Pediatric Serious Illness Communication
Background: Early advance care planning (ACP) is associated with improved outcomes in pediatrics, yet few rigorously developed curricula exist to train interprofessional clinicians in ACP communication. Objectives: To develop, pilot and evaluate an evidence-ba…
Development of pediatric palliative care in Mexico: adapted review of the World Health Organization model
All children living with a life-limiting and/or threatening condition or illness -regardless of any circumstance- should have access to palliative care, active total care of the child’s body, mind and spirit that also provides family support. The World Health …
Development of the PRECIOUS Short-Form (PRECIOUS-SF) quality of care measure for children with serious illnesses
Background: Rising number of children with complex medical conditions necessitate regular healthcare quality evaluation to achieve optimal outcomes. To address the need for a periodic and quick assessment of quality of care in serious childhood illnesses, we d…
Differences in Inpatient Palliative Care Consultation During the Terminal Admission for Pediatric Neuro-Oncology Patients
Pediatric neuro-oncology patients have one of the highest mortality rates among all children with cancer. Our study examines the potential relationship between palliative care consultation and intensity of in-hospital care and determines if racial and ethnic d…
Differences in pain episodes among children with complex chronic conditions at end of life
Objective: This study examined disparities in pain episodes at end-of-life (EOL) among children with complex chronic conditions (CCCs).
Methods: This was a retrospective study of children and young adults ages 0-25 years who died in-hospital at a U.S. academi…
Digital storytelling as a memory-making intervention for children and families in paediatric palliative care in Ireland: an adaptation study
Memory making is a core component of holistic paediatric palliative care. However, traditional artifact-based keepsakes (e.g., handprints) are often passive and lack the developmental and cultural sensitivity needed for meaningful engagement. A more participat…
Disparities in specialist palliative care for Taiwanese children and young adults impacted by local digital development and noncancer diagnoses
Background
Disparities in specialist palliative care (SPC) are complex. Families of children and young adults with life-limiting conditions in digitally advanced areas have better access to health information and services.
Objectives
To examine SPC and end-of…
Dobbs-driven expansion of perinatal palliative care: a scoping review of the evidence and its limits
As abortion care restrictions increase, a growing population is continuing pregnancies complicated by life-limiting fetal conditions, making it more critical than ever to evaluate the state of the evidence in perinatal palliative care (PPC). Perinatal palliati…
Early Integration of Palliative Care Services in Pediatric Stem Cell Transplant Patients
Patients undergoing hematopoietic stem cell transplant are at risk for significant morbidity and mortality throughout their treatment course. The aim of this evidence-based practice project was to determine if the use of a palliative care trigger tool impacted…
Early phase study enrollment in Canadian children with cancer near end of life: A retrospective cohort study from Cancer in Young People in Canada
Background: Little is known about children with cancer who participate in early phase (phase 1/2) oncology trials toward the end of life (EOL). The authors sought to describe the proportion of Canadian children with cancer who participate in trials in their la…
Early Versus Late Pediatric Palliative Care in Oncology: A Systematic Review of Outcomes, Disparities, and Implementation Barriers
This systematic review, conducted per PRISMA 2020 guidelines, synthesizes evidence on early pediatric palliative care (PPC) versus late or no PPC in children and young adults (0–21 years) with life-threatening oncologic illnesses. A comprehensive search of MED…
Economic costs of health and social care for a child with a life-limiting condition in their last year of life: A systematic review
Aim: To systematically review and descriptively synthesise the costs associated with any health and/or social care services provided to children with a life-limiting condition, in their last year of life.
Methods: Systematic review using MEDLINE, EMBASE, CENT…
Education Needs for Pediatrics Residency Training: Bringing Palliative Care to the Table
"To the Editor:
With the changing Accreditation Council for Graduate Medical Education requirements and the looming general and subspecialty pediatrician shortages, now is the time to consider carefully pediatric residency training. Aye et al should be applaud…
Effective communication in pediatric palliative care: Evaluation of two educational videos
Objectives: In pediatric palliative care, effective communication is one of the most important skills. However, physicians often lack proper training. This study examines how to enhance medical students' ability to deliver a life-limiting diagnosis to parents.…
Effectiveness of a Diagnosis Trigger List on Increasing the Integration of Palliative Care in the Neonatal Intensive Care Unit
Background: Palliative care is underutilized in the neonatal intensive care unit (NICU). Many patients who qualify for palliative care in the NICU are not being referred.
Purpose: The project's purpose was to promote the integration of palliative care in the …
Effectiveness of Non-Pharmacological Methods in Reducing Pain in Paediatric Patients and the Role of Nursing; A Systematic Review
The prevalence of paediatric pain has increased and is a leading cause of hospital attendance. Non-pharmacological treatments for pain relief in paediatrics are experiencing a boom.Objective: to identify the effectiveness of non-pharmacological methods in redu…
Effect of nurse-led intervention programs based on spiritual care on the resilience and death anxiety in parents of children and adolescents with cancer, a randomized clinical trial
BACKGROUND: Life-threatening and progressive diseases such as cancer not only affect the lives of adolescents but also significantly impact their parents. Spiritual care for these parents may help them manage psychological challenges, develop resilience, and r…
Efficacy of Traditional, Complementary, and Integrative Medicine in Pain and Psychological Distress Management for Pediatric Palliative Patients: A Systematic Review and Meta-Analysis of Randomized Controlled Trials
Context Traditional, complementary, and integrative medicine (TCIM) is being increasingly used to manage symptoms in patients with palliative needs. However, there is a lack of evidence to guide its use in the pediatric palliative care (PPC) setting. Objective…
Electronic nursing documentation in paediatric palliative care: a scoping review
Background:
Nursing documentation within electronic medical records (EMRs) is crucial in paediatric palliative care.
Methods:
A scoping review was conducted to assess the state of nursing documentation in EMRs following Arksey and O’Malley's framework and Joa…
Emotional Labor in Pediatric Palliative Care: A Scoping Review
Background: Caring for children in palliative care especially impacts healthcare professionals' personal and professional lives. Their emotional experience and needs are frequently forgotten. Healthcare professionals face emotional demands when caring for chil…
Empowering Parents in Neonatal Decision Making Using Q-Methodology: Development Of a Decision Guidance Framework for Necrotizing Enterocolitis
Background/objectivesGiven the high risk of peri-operative mortality and postoperative morbidities in surgical necrotizing enterocolitis (NEC), parents are faced with an extraordinarily difficult and emotionally charged decision. Together with healthcare profe…
“Enabling Families to Find Their Own Path” – A Narrative Exploration of the Role of Social Workers When a Child is Receiving End-of-Life Care in Hospital
Social workers are frontline professionals providing psychosocial care to families when children are receiving end-of-life care. To explore the social work role in this context, data was collected from a cohort of 12 social workers employed at a national child…
End of life care in paediatric settings: UK national survey
Objectives: To describe end of life care in settings where, in the UK, most children die; to explore commonalities and differences within and between settings; and to test whether there are distinct, alternative models of end of life care.
Methods: An online …
End of Life Care Practices at a Tertiary Cancer Centre in India: An Observational Study
Purpose: To assess the End of life care (EOLC) practices and the magnitude of futile care in a tertiary cancer center. To find out the barriers in provision of good EOLC in cancer patients. Methods: An observational study was done on 129 patients. Patients wer…
End-of-Life Course and Subspecialty Palliative Care Involvement for Children on Mechanical Circulatory Support: Five-Center Retrospective Cohort Study from the United States, 2015-2020
Objectives: To characterize end-of-life (EOL) care and subspecialty palliative care (SPC) involvement in children with heart disease supported on mechanical circulatory support (MCS), including ventricular assist devices (VADs) and extracorporeal membrane oxyg…