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Published literature

Publications

Published children's palliative care research: browsable, searchable and filterable by the same taxonomy as researchers, groups and guides.

This library is curated by The Siden Research Team as part of the TRENDS in Pediatric Palliative Care newsletter and library. Learn more about TRENDS and The Siden Research Team and subscribe to read their monthly expert commentaries on their website.

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Showing 1–22 of 22 publications

Developing a culturally relevant bereavement needs assessment tool (CANCOPE-PI) for caregivers of children with cancer in India: a participatory research approach
Suresh V, Mittal A, Venketeswaran M, Radhakrishnan V, Veeraiah S, Ayloor Seshadri R · Research Involvement & Engagement · 2026 · DOI: 10.1186/s40900-026-00886-5
South-East AsiaIndiaGrief & bereavementOncologyParents/CaregiversIntervention Evaluation
Effectiveness of an Educational Program on Nurses' Competence Regarding Palliative Care of Children with Cancer in Mosul City
Bko E, Khaleel R · The Malaysian Journal of Nursing (MJN) · 2026 · DOI: 10.31674/mjn.2026.v17i04.008
Introduction: Pediatric palliative care is essential for improving the quality of life of children with cancer and their families. Nurses play a critical role in delivering this care; however, many lack adequate training and competence in pediatric palliative …
Eastern MediterraneanIraqEducation & TrainingNursingIntervention EvaluationQuantitative
Impact of Palliative Care Educational Program on Knowledge and Attitude Regarding Pediatric Palliative Care Among Healthcare Professionals Working in Nepal
Ghimire B, Rayala S, Doherty M, Poudel A, Sapkota S, Ranger M, Srirama S · Paediatric and Neonatal Pain · 2026 · DOI: 10.1002/pne2.70024
ABSTRACT There is a critical and persistent unmet need for pediatric palliative care (PPC) services in low- and middle-income countries (LMICs), with the lack of specialized training among healthcare professionals (HCPs) identified as a major barrier. This stu…
South-East AsiaNepalEducation & TrainingIntervention EvaluationQuantitative
Improved Quality of Life in Children and Families Following Enrollment in a Pediatric Palliative Care Program: A Prospective Cohort Study
Guadarrama-Orozco J, Mendoza-Martinez M, Bautista-Tellez S, Yanez-Maldonado P, Mendoza-de-la-Vega K, Castilla-Peon M · Children (Basel, Switzerland) · 2026 · DOI: 10.3390/children13020196
Background/Objectives: Pediatric palliative care seeks to relieve suffering and improve the quality of life of children with severe conditions and their families. This prospective cohort study assessed changes in quality of life following enrollment in a pedia…
The AmericasMexicoOncologyCohort StudyIntervention EvaluationQuantitative
The effect of an educational intervention for caregivers of children receiving palliative care: A quasi-experimental study
Kenc I, Yayan E, Zengin M · Journal of pediatric nursing · 2026 · DOI: 10.1016/j.pedn.2026.02.010
Eastern MediterraneanTürkiyeParents/CaregiversIntervention EvaluationQuantitative
Caregiver preferences for palliative care in pediatric oncology: an educational intervention
Gallegos J, Nelson C, Conour C, Ludrosky J, Tomboc P, Dower J, Duncan C · Children's Health Care · 2023 · DOI: 10.1080/02739615.2023.2199161
The AmericasUnited States of AmericaOncologyParents/CaregiversIntervention EvaluationQuantitative
Utilization of a Prenatal Palliative Care Consultation Pathway for Congenital Heart Disease
Mikal M, Gandhi R, Walsh S · Journal of hospice and palliative nursing : JHPN : the official journal of the Hospice and Palliative Nurses Association · 2023 · DOI: 10.1097/NJH.0000000000000917
The AmericasUnited States of AmericaCardiologyPeri/neonatal palliative careIntervention EvaluationQuantitative
Pediatric Palliative Telehealth Care from Hospital to Hospital: A Pilot Project (QI653)
Evan E, Sandesara A, Mock K · Journal of Pain and Symptom Management · 2020 · DOI: 10.1016/j.jpainsymman.2019.12.262
Objectives: * Explain a novel method for creating pediatric palliative care resources using telehealth technology. * Describe preliminary data demonstrating project feasibility and satisfaction.
The AmericasUnited States of AmericaCare ModelsPrimary CareTechnologyIntervention EvaluationQuantitative
Prolonged Grief, Posttraumatic Stress, and Depression Among Bereaved Parents: Prevalence and Response to an Intervention Program
Baumann I, Kunzel J, Goldbeck L, Tutus D, Niemitz M · Omega (Westport) · 2020 · DOI: 10.1177/0030222820918674
EuropeGermanyGrief & bereavementParents/CaregiversIntervention EvaluationQuantitative
The effect of web-based pediatric palliative care education on the palliative care knowledge level and practices of nursing students
Akdeniz Kudubes A, Bektas M · Perspectives in psychiatric care. · 2019 · DOI: 10.1111/ppc.12463
PURPOSE: This study is aimed to investigate the effect of web-based pediatric palliative care education on nursing students' knowledge level and practices related to palliative care.
EuropeTürkiyeEducation & TrainingNursingTechnologyIntervention EvaluationQuantitative
Effect of Permanent Feeding Tube Placement on Healthcare Utilization Among Children with Neurologic Impairment (TH340A)
Nelson K, Rosella L, Mahant S, Guttmann A, Cohen E · Journal of Pain and Symptom Management · 2018
The AmericasCanadaPain & symptom managementSevere Neurological ImpairmentIntervention EvaluationQuantitative
Mindful Movement: Tai Chi, Gentle Yoga, and Qi Gong for Hospitalized Pediatric Palliative Care Patients and Family Members
Parry S, Staenberg B, Weaver M · Journal of Palliative Medicine · 2018 · DOI: 10.1089/jpm.2018.0203
The AmericasUnited States of AmericaIntegrative MedicineIntervention EvaluationQuantitative
Partnering with Payers to Meet the Needs of Pediatric Palliative Care Patients (FR473)
Cunningham M, Williamson S, Baker J, Pennington K, Young A, Bolick R, Norton C · Journal of Pain and Symptom Management · 2018
The AmericasUnited States of AmericaCommunityHealth EconomicsIntervention Evaluation
Personalize the Patient Initiative: A Demedicalized Medical Chart Cover Page for Children Receiving Palliative Care
Serena K, Piva J, Andreolio C, Carvalho P, Rocha T · Rev Bras Ter Intensiva. · 2018 · DOI: 10.1089/jpm.2017.0698
The AmericasUnited States of AmericaTechnologyIntervention Evaluation
The Use of Simulation to Improve Resident Communication and Personal Experience at End-of-Life Care
Nellis M, Howell J, Ching K, Bylund C · Journal of Pediatric Intensive Care · 2017 · DOI: 10.1055/s-0036-1584684
The AmericasUnited States of AmericaCommunicationEducation & TrainingEnd of Life CareIntervention EvaluationQuantitative
Use of Telehealth in Pediatric Palliative Care
Winegard B, Miller E, Slamon N · Telemed J E Health · 2017 · DOI: 10.1089/tmj.2016.0251
The AmericasUnited States of AmericaCommunityTechnologyIntervention Evaluation
[Evaluation of Specialised Paediatric Palliative Home Care in Lower Saxony, Germany - A Qualitative Study on Parents' Perspectives]
Kremeike K, Mohr A, Nachtmann J, Reinhardt D, Geraedts M, Sander A · Int J Neurosci · 2016
EuropeGermanyCommunityParents/CaregiversIntervention EvaluationQualitative
Seeking the best training model for difficult conversations in neonatology
Lechner B, Shields R, Tucker R, Bender G · Journal of Perinatal Medicine · 2016 · DOI: 10.1515/jpm-2015-0110
The AmericasUnited States of AmericaCommunicationEducation & TrainingPeri/neonatal palliative careIntervention EvaluationQuantitative
The Praecox Program: Pilot testing of an online educational program to improve neonatal palliative care practice
Kain V · Journal of Neonatal Nursing · 2016 · DOI: 10.1016/j.jnn.2016.11.003
Western PacificAustraliaEducation & TrainingPeri/neonatal palliative careQuality of CareIntervention EvaluationQuantitative
Impact of a multifaceted education program on implementing a pediatric palliative care guideline: a pilot study
Jagt-van Kampen C, Kremer L, Verhagen A, Schouten-van Meeteren A · BMC medical education · 2015 · DOI: 10.1186/s12909-015-0478-z
EuropeNetherlandsEducation & TrainingQuality of CareIntervention EvaluationQuantitative
A pilot study of the effectiveness of home teleconsultations in paediatric palliative care
Bradford N, Young J, Armfield N, Bensink M, Pedersen L, Herbert A, Smith A · Journal of Telemedicine & Telecare · 2012
We conducted a pilot study to investigate the effectiveness of a home telehealth service for paediatric palliative care consultations. Over a 10 week period, 14 of the 17 caregivers approached to be part of the study agreed to participate. Families were alloca…
Western PacificAustraliaCare ModelsCommunityParents/CaregiversTechnologyIntervention EvaluationQuantitative
Essential Support After Critical Illness: Pediatrics Extracorporeal Life Support (ECLS) Follow-Up Program
Dryden-Palmer K, Fazari L · Canadian Journal of Critical Care Nursing (CAN J CRIT CARE NURS), 32-33
The AmericasUnited States of AmericaIntervention Evaluation