Published literature
Publications
Published children's palliative care research: browsable, searchable and filterable by the same taxonomy as researchers, groups and guides.
This library is curated by The Siden Research Team as part of the TRENDS in Pediatric Palliative Care newsletter and library. Learn more about TRENDS and The Siden Research Team and subscribe to read their monthly expert commentaries on their website.
Showing 1–25 of 56 publications
Effectiveness of an Educational Program on Nurses' Competence Regarding Palliative Care of Children with Cancer in Mosul City
Introduction: Pediatric palliative care is essential for improving the quality of life of children with cancer and their families. Nurses play a critical role in delivering this care; however, many lack adequate training and competence in pediatric palliative …
Examining the relationship between neonatal nurses’ palliative care attitudes and compassion fatigue levels
Background Compassion fatigue may be associated with neonatal intensive care unit (NICU) nurses’ ability to provide quality palliative care. Understanding this relationship may contribute to the development of supportive strategies for neonatal nurses and neon…
Pediatric intensive care nurses' perspectives on the quality of dying and death among hospitalized children: A Cross-Sectional Study
Background: Nurses are continuously present at the bedside and work closely with both children and families; therefore, their perspectives can provide a detailed understanding of end-of-life care. This study examined the quality of dying and death among hospit…
Whispers of Comfort: Filipino Pediatric Palliative Nurses’ Insights on Holistic Care at New Hope Foundation, China
Purpose of the Study: This study explored the lived experiences of Filipino pediatric palliative care nurses working at the New Hope Foundation in China. It sought to understand how these nurses deliver holistic care to terminally ill children while managing e…
“At Least I Can Push this Morphine”:PICU Nurses’ Approaches to Suffering Among Dying Children
Context: Parents of children who die in the pediatric intensive care unit (PICU) carry memories of their child's suffering throughout a lifelong grieving experience. Given their prolonged time at the bedside, PICU nurses are poised to attend to dying children'…
Nursing Perspective of Providing Palliative Care to the Children—A Narrative Review
Introduction Palliative care of children (PCC) is a philosophical and a structured approach to providing tailored care to children with life-threatening diseases. Understanding the role of nurses and empowering them to take up the role of palliative care nurse…
Butterflies and Ribbons: Supporting Families Experiencing Perinatal Loss in Multiple Gestation
Introduction: In neonatology, multiple pregnancies are common. Unfortunately, it is not rare for one baby to die. Communication with parents in these circumstances has been demonstrated to be sub-optimal. Methods: Two educational programs were evaluated with p…
Neonatal palliative care: Assessing the nurses educational needs for terminally ill patients
BACKGROUND: For terminally sick neonates and their families, it's crucial to provide holistic nursing care that incorporates both curative and palliative care as much as feasible. It is well known that the biggest obstacle to delivering palliative care for neo…
Support for families of a child in a palliative situation in the cardiac pediatric intensive care unit
Background and Aim: The birth prevalence of children with congenital heart disease is about one percent a year. This might mean that a palliative diagnosis maybe directly exists from birth due to the complexity of the congenital heart disease. The required int…
Evaluation of an Electronic Medical Record Module for Nursing Documentation in Paediatric Palliative Care: Involvement of Nurses with a Think-Aloud Approach
Background: Paediatric palliative care (PPC) is a noncurative approach to the care of children and adolescents with life-limiting and life-threatening illnesses. Electronic medical records (EMRs) play an important role in documenting such complex processes. De…
Experience of Pediatric Patient Death, Moral Distress, and Turnover Intention among Pediatric Nurses at a Tertiary Hospital in South Korea: A Cross-Sectional Study
Background: Pediatric nurses are particularly vulnerable to moral distress and turnover due to frequent experiences with patient death combined with limited pediatric palliative resources and related support. Objective(s): This study examined pediatric nurses'…
Family-centered care and pediatric death in the emergency department: A qualitative study using framework analysis
Background
Family-centered care is an important concept underpinning care of children. Although much researched in some settings, little research has explored specialist settings, or areas where both children and adults are cared for, such as the emergency dep…
"I Didn't Want My Baby to Pass, But I Didn't Want Him Suffering Either": Comparing Bereaved Parents' Narratives With Nursing End-of-Life Assessments in the Pediatric Intensive Care Unit
Little is known about how nursing care at the end of a child's life impacts long-term parental bereavement. We aimed to explain, contextualize, and examine comparisons between quantitative trends in children's end-of-life care and parents' qualitative percepti…
NICU nurses' moral distress surrounding the deaths of infants
BACKGROUND: As Korean neonatal nurses frequently experience the deaths of infants, moral distress occurs when they provide end-of-life care to the infants and their families. Although they need to care for the patients' deaths and consequently experience burno…
The Neonatal Palliative Care Attitude Scale: Psychometric properties for Portuguese neonatal nurses
BACKGROUND: This study is aimed to perform the translation and cultural adaptation of the Neonatal Palliative Care Attitude Scale (NiPCAS) and evaluation of its psychometric properties with Portuguese neonatal nurses. METHOD(S): The research started with a sco…
Vicarious learning and communication self-efficacy: A pediatric end-of-life simulation for pre-licensure nursing students
BACKGROUND: End-of-life clinical experiences, particularly in pediatrics, are quite limited for pre-licensure nursing students. Though effective, end-of-life simulations can be costly, require facilitators trained in palliative and end-of-life care, and are re…
Caring for a child with a life limiting condition: The experiences of nurses in an intellectual disability service provider
This study elicited the experiences of nurses caring for children with life-limiting conditions and their family, within a community based intellectual disability service. A qualitative descriptive research approach was adopted where purposeful sampling recrui…
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