Published literature
Publications
Published children's palliative care research: browsable, searchable and filterable by the same taxonomy as researchers, groups and guides.
This library is curated by The Siden Research Team as part of the TRENDS in Pediatric Palliative Care newsletter and library. Learn more about TRENDS and The Siden Research Team and subscribe to read their monthly expert commentaries on their website.
Showing 1776–1800 of 4332 publications
Numbers, characteristics, and medical complexity of children with life-limiting conditions reaching age of transition to adult care in England: a repeated cross-sectional study
Background
The number of children with life-limiting conditions in England is known to be increasing, which has been attributed in part to increased survival times. Consequently, more of these young people will reach ages at which they start transitioning to a…
Nurses and nursing students' experiences on pediatric end-of-life care and death: A qualitative systematic review
BACKGROUND: End-of-Life care and experiencing death of infants, children, and teenagers remain one of the most difficult and traumatic events for nurses and nursing students, potentially leading to personal and professional distress. Although efforts have been…
Nurses' experiences of managing vulnerability when working with seriously ill children
BACKGROUND: Nurses who work with very unwell or dying children may experience intense sorrow and distress in response to loss, which can take an emotional toll on them, potentially affecting care provision. AIM: This study aimed to explore the experiences of c…
Nurses' involvement in end-of-life decisions in neonatal intensive care units
BACKGROUND: End-of-life decision-making for terminally ill neonates raises important legal and ethical issues. In Greece, no recent data on nurses' attitudes and involvement in end-of-life decisions are available. RESEARCH QUESTION/AIM: To investigate neonatal…
Nursing Care at End of Life in Pediatric Intensive Care Unit Patients Requiring Mechanical Ventilation
BACKGROUND: Parents' perceptions of critical care during the final days of their child's life shape their grief for decades. Little is known about nursing care needs of children actively dying in the pediatric intensive care unit (PICU). OBJECTIVES: To examine…
Opioids in Palliative Care
Palliative care is an essential part of the right to health of all human beings. This medical specialty aims to improve the quality of life of patients with chronic or life-threatening conditions, their families, and caregivers. This chapter presents some cond…
Overview of perinatal palliative care in Brazil
Significant attention to palliative care in terminally ill patients has only been effective in Brazil since the year 2000, although there have been isolated actions since the 1980s. When the case involves fetuses or neonates unable to cure, communication and c…
Paediatric death after withdrawal of life-sustaining therapies: a scoping review protocol
INTRODUCTION: The physiology of dying after withdrawal of life-sustaining measures (WLSM) is not well described in children. This lack of knowledge makes predicting the duration of the dying process difficult. For families, not knowing this process's duration …
Palliative and Critical Care: Their Convergence in the Pediatric Intensive Care Unit
Palliative care (PC) is an integral component of optimal critical care (CC) practice for pediatric patients facing life-threatening illness. PC acts as an additional resource for patients and families as they navigate through critical illness. Although PC enco…
Palliative Care and Population Management: Utilization of Palliative Care in Pediatric Critical Care Nursing
Historically, the goal of care in a pediatric or neonatal intensive care unit was to do everything medically possible to cure illness or prolong life. When curative therapies were no longer appropriate, the approach was to turn to end-of-life care. Currently, …
Palliative care for adolescents and young adults with advanced illness: A scoping review
BACKGROUND: Age-related complex medical conditions have been commonly reported among adolescents and young adults with advanced life-limiting illness. There is increasing interest in exploring their palliative care needs and end-of-life experiences. AIM: This …
Palliative care models and innovations in 4 Eastern Mediterranean Region countries: a case-based study
Background: There is a global agreement that palliative care should be universally accessible. However, in low- and middle- income countries and conflict zones, most people lack access to it. In the Eastern Mediterranean Region (EMR), no country has achieved i…
Palliative Care Needs Assessment for Pediatric Complex Care Providers
Context Children with medical complexity (CMC) are often cared for by both complex care and palliative care pediatric teams. No prior research has investigated the relationship between these two disciplines. Objectives The purpose of this article is to investi…
Palliative care nurse: A quantitative study of caring for neonates at end-of-life stage
Objective: This study aimed to evaluate the quality of the care provided to newborns at End-of-Life (EOL) stages and compare the care which is already being given to the infants admitted to the NICUs of the selected hospital in (XXX) with the existing standard…
Palliative Care Programs in Children's Hospitals
BACKGROUNG AND OBJECTIVES: This study determined the prevalence of PPC programs in the United States and compared the environment of children's hospitals with and without PPC programs.
METHODS: Analyses of the multicenter Children's Hospital Association Annual…
Palliative care services for children with life-limiting conditions
Background: Palliative care (PC) for children with life-limiting conditions (LLC) is a holistic approach to achieve the best quality of life. Aim(s): Highlighting collaboration between pediatric and PC services is essential in providing seamless care. Method(s…
Palliative Care Services within a Pediatric Hematology-Oncology Program in a Low-Resource Setting
CONTEXT: Outcomes for children with cancer in sub-Saharan Africa (SAA) are dismal due to delayed diagnosis and limited access to curative therapy. When establishing a pediatric hematology-oncology (PHO) program in low-resource settings, early integration of pa…
Palliative Care Utilization Following Out-of-Hospital Cardiac Arrest in Pediatrics
OBJECTIVES: Pediatric out-of-hospital cardiac arrest (OHCA) is associated with significant morbidity and mortality. Pediatric palliative care (PPC) services could provide an integral component of the comprehensive care necessary for these patients and their fa…
Palliative home-based care to pediatric cancer patients: characteristics and healthcare delivered
OBJECTIVES: Cancer patients constitute an important group in pediatric palliative care. Though the patients' home is the preferred place of care, little is known about the characteristics of patients attended by units that provide home assistance. Our objectiv…
Palliative sedation for children at end of life: a retrospective cohort study
BACKGROUND: Palliative sedation is consciously reducing the patient's consciousness to alleviate the refractory symptoms. However, studies on palliative sedation for children are scarce. We aimed to survey the symptom control and risks for children with sedati…
Parental Perspective in Paediatric Palliative Care: A Systematic Review of Literature Using the PRISMA Method
Research in Parental Perspectives are pivotal in gaining understanding of parents' experiences, issues, concerns and attitude in pediatric palliative care which affects their decision making. However only a limited number of such studies have included the firs…
Parental support needs during pediatric resuscitation: A systematic review
Background Resuscitation of a child is one of the most critical times that parents need support, and parental support is fundamental to providing family-centered care in high acuity settings. The aim of this systematic review was to appraise and synthesize stu…