Published literature
Publications
Published children's palliative care research: browsable, searchable and filterable by the same taxonomy as researchers, groups and guides.
This library is curated by The Siden Research Team as part of the TRENDS in Pediatric Palliative Care newsletter and library. Learn more about TRENDS and The Siden Research Team and subscribe to read their monthly expert commentaries on their website.
Showing 1–25 of 26 publications
Attitudes and Needs of Health Care Providers Toward Artificial Intelligence-Assisted Pediatric Palliative Care: Mixed Methods Study
Background: While artificial intelligence's (AI's) transformative potential in health care is widely acknowledged, its application in highly sensitive, humanistic domains like pediatric palliative care (PPC) remains largely unexplored. Objective(s): This study…
Circle of light education model: Death education for children in end of life care
This study delves into the Circle of Light educational framework, focusing on death education for children receiving end of life care. It highlights the importance of such education in fostering psychological and spiritual well-being and alleviating death-rela…
Comparative analysis of research hotspots and development trends of pediatric palliative care at home and abroad based on CiteSpace: a bibliometric study
Aim: To visualize and analyze the literature on palliative care for children based on Web of Science and CNKI database.
Method(s): The research literature on child palliative care included in the Web of Science and CNKI databases from 2000 to 2024 was searched…
Culturally Informed Communication of Neonatal Death in Chinese Neonatal Intensive Care Units
This qualitative study describes the experiences of physicians and nurses about communicating with parents about neonatal death at 2 neonatal intensive care units (NICUs) in 2 hospitals in Yangzhou City, Jiangsu Province, China. Key Points: Question: What are …
Current situation, challenges and future trends of pediatric palliative care from a multi-dimensional perspective: a narrative review
Background and Objective: Pediatric palliative care (PPC) provides holistic support for children and adolescents with life-threatening or life-limiting conditions and their families. This narrative review summarizes PPC concepts, current service models, key im…
Enhancing the Resilience of Bereaved Parents: Practical Experiences and Needs Perceived by Healthcare Professionals
Aims: To explore the practical experiences and perceived needs of healthcare professionals in fostering resilience among bereaved parents. Design: A qualitative descriptive study was conducted. Methods: Twenty‐seven healthcare professionals were recruited from…
Network analysis of prolonged grief disorder and anxiety symptoms among bereaved Chinese parents who lost their only child
Parents who have lost their only child and cannot or do not wish to adopt or have another child are labeled Shidu parents. Network analysis is used to examine symptom-level interactions in mental disorders. This study aimed to investigate the comorbidity netwo…
Pediatric End-of-Life Decision-Making in Mainland China: Case-Based Analysis of Illness Narratives
BackgroundPediatric palliative care in Mainland China is still developing. Biological, psychological, and social factors may change during the course of illness and after the child's death.ObjectivesThis study examines pediatric end-of-life decision-making in …
Preferences and willingness to pay for palliative care among parents of children with cancer: a Discrete Choice Experiment
Purpose To quantify the preference of parents of children with cancer for palliative care (PC) in China to provide references for the development of service programs. Methods A discrete choice experiment (DCE) was used to explore preferences for PC among paren…
Prolonged Grief Disorder Symptoms and Posttraumatic Growth Among Chinese Shidu Parents: A Latent Transition Analysis
Objective: Chinese shidu parents (bereaved parents who have lost the only child) may experience prolonged grief disorder, as well as posttraumatic growth (PTG). This study aimed to examine their latent classes and transition patterns of prolonged grief disorde…
The Do‐Not‐Resuscitate Order for Children With Terminal Cancer Admitted to a Palliative Care Unit
Introduction: Research on do‐not‐resuscitate (DNR) orders mainly focuses on adult patients, with only a few studies investigating children. We aimed to investigate the use of DNR orders and factors associated with the signing of a DNR order among children with…
Whispers of Comfort: Filipino Pediatric Palliative Nurses’ Insights on Holistic Care at New Hope Foundation, China
Purpose of the Study: This study explored the lived experiences of Filipino pediatric palliative care nurses working at the New Hope Foundation in China. It sought to understand how these nurses deliver holistic care to terminally ill children while managing e…
The critical role of education in shaping nurses' attitudes and intentions towards neonatal palliative care: A network analysis
Abstract
Background
Neonatal palliative care is an essential component of comprehensive neonatal care; however, its implementation remains challenging worldwide, particularly in low- and middle-income countries due to limited resources, cultural barriers, and …
In every detail: spiritual care in pediatric palliative care perceived by healthcare providers
Spiritual care is an essential domain of pediatric palliative care. The current mainland China faces a lack of national guidance and a shortage of specialized personnel to provide spiritual care in a traditional developing country.
Objectives: To identify spi…
Social support and prolonged grief disorder symptoms in parents who lost their only child from urban and rural China
Objective: The one-child policy has existed in China for more than 30 years. It brought benefits to the country's economic development and reduced the magnitude of the population within a short period. However, it has led to the emergence of a significant numb…
Facilitators and Barriers Affecting Implementation of Neonatal Palliative Care by Nurses in Mainland China
Neonatal nurses in mainland China encounter various challenges when it comes to delivering palliative care to neonates. The aim of this study was to determine the barriers and facilitators of neonatal nurses' attitudes to palliative care for neonates in mainla…
Pediatric Palliative Care for Children with Cancer in a Children's Tertiary Hospital in China: Six-Year Experience of a Pediatric Palliative Care Service
Background: Pediatric palliative care (PPC) does not meet current needs, particularly in low- and middle-income countries. Objective: We evaluated the first PPC team to serve patients with cancer in a tertiary children's hospital in China. Design: Single-cente…
Spiritual needs and communicating about death in nonreligious theistic families in pediatric palliative care: A qualitative study
Background: Spiritual support should be offered to all patients and their families regardless of their affiliated status with an organized religion.
Aim: To understand nonreligious theistic parents’ spirituality and to explore how parents discuss death with t…
Ethical issues in neonatal intensive care units
On one hand, advances in neonatal care and rescue technology allow for the healthy survival or prolonged survival time of critically ill newborns who, in the past, would have been non-viable. On the other hand, many of the surviving critically ill infants have…
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