Published literature
Publications
Published children's palliative care research: browsable, searchable and filterable by the same taxonomy as researchers, groups and guides.
This library is curated by The Siden Research Team as part of the TRENDS in Pediatric Palliative Care newsletter and library. Learn more about TRENDS and The Siden Research Team and subscribe to read their monthly expert commentaries on their website.
Showing 26–47 of 47 publications
Psychometric properties of the Chinese mainland version of the Palliative Care Spiritual Care Competency Scale (PCSCCS-M) in nursing: a cross-sectional study
BACKGROUND: Spiritual care competencies are among the primary professional skills that enable best practices in nursing. Assessing these competencies and identifying those that are insufficient are important tasks. The traditional Chinese version of the Pallia…
Spiritual assessment and spiritual care offerings as a standard of care in pediatric oncology: A recommendation informed by a systematic review of the literature
Children with cancer and their families experience shifts in spiritual wellness from diagnosis through treatment and survivorship or bereavement. An interdisciplinary team conducted a systematic review of quantitative and qualitative research on spiritual asse…
Spiritual Care: Minimizing the Vulnerability of Parents Whose Children With Cancer Face the End of Life
There is a distinct lack of literature related to the spiritual care of parents whose children with cancer are at the end of life. This has led to a dearth in evidence about how nurses may intervene with spiritual care interventions to best support these vulne…
Spirituality among parents of children with cancer in a Middle Eastern country
PURPOSE: Family caregivers of children with cancer face emotional, psychological, and spiritual challenges coping with their child's illness. For ensuring comprehensive multidisciplinary pediatric care, there is a need to understand and define what spiritualit…
Spiritual frameworks in pediatric palliative care: Understanding parental decision-making
Parents of seriously ill children are charged with making complicated medical decisions, and many of those decisions are made during their children's hospitalizations. As medical staff seek to support parents, it is important for them to understand what resour…
The Need for a Shared Understanding: Domains of Care and Composition of Team in Pediatric Palliative Care Guidelines
Conceptual confusion is a primary barrier to providing quality palliative care. This study aimed to analyze pediatric palliative care (PPC) guidelines from a conceptual perspective to facilitate a shared understanding of palliative care in pediatrics. Five onl…
The spiritual needs of seriously ill children and their families
Background Studies have documented the experiences of families with seriously ill children, but few have focused on the spiritual needs of families confronted with a child's imminent death.
Use of spiritual coping strategies by gender, race/ethnicity, and religion at 1 and 3 months after infant's/child's intensive care unit death
BACKGROUND AND PURPOSE: In the United States, 57,000 children (newborn to 18 years) die annually. Bereaved parents may rely on religious or spiritual beliefs in their grief. The study's purpose was to examine differences in parents' use of spiritual and religi…
Aspects of palliative care in child neurology
Pediatric palliative medicine/care (PPC) is an approach to care that focuses on improving the quality of life of children facing a life limiting condition (LLC). LLCs are classified by the ACT (Association for children with life-threatening or terminal conditi…
Children's palliative care now! Highlights from the second ICPCN conference on children's palliative care, 18-21 May 2016, Buenos Aires, Argentina
The International Children's Palliative Care Network held its second international conference on children's palliative care in Buenos Aires, Argentina, from the 18th-21st May 2016. The theme of the conference was 'Children's Palliative Care. Now!' emphasising …
Exploring the spiritual needs of families with seriously ill children
Although we know that families of seriously ill children experience spiritual distress, especially at the end of the child's life, there is little information on the specific spiritual needs of families. In order to develop further training for nurses in paedi…
Family-oriented palliative care: Parents' perspective and experience
Palliative care is needed for children with neurodegenerative and progressive neuromuscular diseases, inborn genetic (e.g., chromosomal disorders, deletion syndromes) or metabolic disorders, as well as for children with early brain lesions which can decrease l…
Impact of early palliative care intervention on maternal stress in mothers of infants prenatally diagnosed with single ventricle heart disease: A randomized clinical trial
Background: Children with single ventricle (SV) cardiac defects requiring staged palliation have a high risk of mortality and receive invasive and complex care, resulting in significant maternal stress. In other complex, life-limiting illnesses among children,…
Religion and Spiritual Care in Pediatric Intensive Care Unit: Parental Attitudes Regarding Physician Spiritual and Religious Inquiry
OBJECTIVE: Parents of seriously ill children require attention to their spiritual needs, especially during end-of-life care. The objective of this study was to characterize parental attitudes regarding physician inquiry into their belief system. MATERIALS AND …
Spirituality among parents of children with cancer at AUBMC
Purpose/Objective: Aims of the Project: To understand what spirituality means for parents of children with cancer admitted to the Children's Cancer Center of Lebanon (CCCL). Background/Rationale: Background: Childhood cancer affects the life of the whole famil…
The provision of spiritual and pastoral care following stillbirth in Ireland: a mixed methods study
BACKGROUND: The death of a baby is recognised as one of the most difficult bereavements with life-long impact for parents. How bereaved parents are cared for influences their grief journey. Optimal holistic care is provided when the physical, emotional, spirit…
Cultural and religious considerations in pediatric palliative care
OBJECTIVE: A growing multicultural society presents healthcare providers with a difficult task of providing appropriate care for individuals who have different life experiences, beliefs, value systems, religions, languages, and notions of healthcare. This is e…
The needs of children with life-limiting conditions: a healthcare-provider-based model
Pediatric hospice and palliative care has progressed in recent years with the development of new programs and models of care. Missing from the empirical literature, however is a model of the needs of children. The purpose of the present study was to develop an…
Human suffering: the need for relationship-based research in pediatric end-of-life care
Children living with and dying from advanced cancer and their families experience significant suffering. The cure of disease and the relief of suffering are dual moral obligations of our professions. To relieve suffering, health care providers must understand …
Nurses' experiences of spiritual communication with seriously III children
Objective: The goal of this study was to explore nurse experiences in communication with children about spiritual topics in order to develop training in this area. Background: Although spiritual care is essential in pediatric palliative care, few providers rec…
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