Published literature
Publications
Published children's palliative care research: browsable, searchable and filterable by the same taxonomy as researchers, groups and guides.
This library is curated by The Siden Research Team as part of the TRENDS in Pediatric Palliative Care newsletter and library. Learn more about TRENDS and The Siden Research Team and subscribe to read their monthly expert commentaries on their website.
Showing 526–550 of 4332 publications
Implementing Pediatric Palliative Care in Vietnam: Initial Experiences and Lessons
Context
There remains an enormous unmet need for pediatric palliative care (PPC), especially in low- and middle-income countries (LMICs). Evaluation of existing PPC programs can inform development of emerging programs. In 2017, a PPC program was established at…
Implementing the Family Talk Intervention among families with a severely ill parent or child with palliative care needs- a longitudinal study of the perspectives of hospital social workers
Background: The Family Talk Intervention (FTI) is a psychosocial intervention supporting families where a family member has palliative care needs. This study aimed to evaluate how the Family Talk Intervention (FTI) was implemented over time from the perspectiv…
Important factors in municipality-based pediatric palliation from healthcare professionals' perspective: A qualitative study
Abstract
Background: Municipality-based pediatric palliative care (PPC) is recommended to promote the quality of life for the child and family by enabling them to stay at home as much as possible. However, municipality-based PPC presents complex challenges and…
Improving Communication Competencies in Neonatology: A Multimodal Simulation-Based Palliative Care Workshop
Background
Effective communication between providers and parents is fundamental in critical care provision. Particularly when discussing goals of care and delivering bad news, which is often complicated by differing values and beliefs. Many trainees lack forma…
Improving Compassionate Extubation Practices in the Pediatric Intensive Care Unit
Background: This study was conducted in a free-standing pediatric academic institution in the pediatric intensive care unit (PICU) and cardiothoracic intensive care unit (CTICU), focusing on children with planned compassionate extubation (CE). Prior to the stu…
Improving Perinatal Palliative Care in the Communities: A Regional Population-Based Study
Objectives: Perinatal palliative care, defined as support for creating birth plans that include treatment and care decisions, is crucial for families facing life-threatening fetal conditions. However, the variability in medical resources across communities nec…
INCREASE IN PALLIATIVE CARE UTILIZATION IN THE PICU BETWEEN 2014-2023
INTRODUCTION: Palliative care (PC) was traditionally reserved for children at the end-of-life, but is now widely considered to be essential for optimizing the management of children and families with complex critical illnesses. This pilot study aimed to examin…
Increasing patient comfort in palliative radiotherapy with a newly developed mattress: a nonrandomized clinical trial
Background: In palliative radiotherapy, many patients experience discomfort and pain during treatment, particularly while lying on flat, hard treatment couches that are considered essential for accurate treatment delivery. Thin foam matts, often used for palli…
Increasing Pediatric Palliative Care Consultation for Patients with Heart Disease and Prolonged Cardiac Intensive Care Stay
Introduction: Patients with congenital heart disease are medically complex and experience high rates of morbidity and mortality. Pediatric palliative care (PPC) supports families navigating complex medical scenarios. This study evaluates the effect of quality …
Infant Organ Donation after Death by Circulatory Criteria: A Literature Scoping Review
Objectives: Infant organ donation is rare but when it does occur, infants are more commonly eligible for donation after circulatory death (DCD) than donation after neurological death. The aims of this scoping review were to identify: 1) existing research, ethi…
Influence of culture and spiritual tradition on support for families of children dying in intensive care units
Purpose: Parents utilize spirituality as a means of coping during and after a child's death. Complexity of grief associated with loss of a child suggests the paramount importance of providing appropriate support for parents while experiencing their child's cri…
Influence of pediatric advance care planning on the secondary outcomes of the BOOST pACP trial: determinants of communication between parents and adolescents with cancer
This study explores the impact of a pediatric advance care planning program (BOOST pACP) on adolescents with cancer and their parents, focusing on behavioral determinants such as attitudes, self-efficacy, intention, and behavior regarding the discussion of ACP…
Injustice and inequality in the provision of perinatal palliative care
Perinatal palliative care (PnPC) is a relatively new branch of pediatric palliative care (PPC), which focuses on providing holistic care in the antenatal, delivery, and neonatal settings. In this paper, we address previously unexplored justice-based ethical qu…
Insights From the International Consensus on Neuro-Irritability in Pediatric Palliative Care Expanding the Known, Challenging the Unknown
Background and objectives: Many children with severe neurologic impairment (SNI) have complex care coordination and management needs, making them eligible for pediatric palliative care (PPC). Indeed, SNI is associated with numerous, often simultaneous, distres…
Insights From the International Consensus on Neuro-Irritability in Pediatric Palliative Care Expanding the Known, Challenging the Unknown
Background and objectives: Many children with severe neurologic impairment (SNI) have complex care coordination and management needs, making them eligible for pediatric palliative care (PPC). Indeed, SNI is associated with numerous, often simultaneous, distres…
Integrated care networks in multidisciplinary rehabilitation therapy services for childhood oncology close to home: lessons learned from an international environmental scan
Background: Integrated care networks (ICNs) close to home have the potential to improve continuity and quality of care for children with cancer and their families during and after treatment. Our goal is to develop such a network for multidisciplinary rehabilit…
Integrated Multimodal Approaches in Pediatric Palliative Oncology: A Systematic Review Focused on Infants and Toddlers
Background/Aim: Pediatric palliative care, particularly in oncology, is aimed at improving the quality of life for children with cancer and other life-limiting conditions. With an increase in the pediatric population eligible for such care, the need for multid…
Integrating the management of critical illness with palliative care: Public health implications
Critical illnesses encompass a wide range of serious and life-threatening conditions that often require intensive care, including advanced life support, complex procedures, and prolonged stays in healthcare facilities. Palliative care has been acknowledged as …
Intensity of Care at the End-of-Life in Pediatrics: A Single Center Analysis With Implications for Advanced Care Planning in Saudi Arabia
Background: Advances in medicine have altered the progression of several pediatric disorders. However, this progress also comes with medical, economic, and ethical challenges, which can negatively affect children's quality of life. Objective: This study examin…
Intensity of Healthcare Utilization Among Pediatric Patients Receiving Concurrent Hospice Care
As children with life-threatening conditions near end-of-life, their burden of disease tends to increase, often resulting in a high intensity of care in the hospital. While an expanding body of data supports the use of palliative and hospice care in this popul…
Interpersonal relationships after prenatal diagnosis of congenital heart disease: Social stressors and supports
Objective: To identify social stressors and supports for expectant parents after prenatal diagnosis of congenital heart disease (CHD) and inform interventions to reduce distress.
Method: Parents of children diagnosed prenatally with CHD (N = 37) were purposiv…
Interpretative Phenomenological Analysis of Mothers' Experience of Caring for Their Child Dying of Cancer at Home
Pediatric palliative care (PPC) places mothers in an extremely challenging situation, where they must confront not just the approaching death of their child, but also their own suffering. In this context, hospitalization at home (HaH) is often the preferred ch…
Interventions for Children of Parents With Cancer From the Time of Cancer Diagnosis Through Bereavement: Two Systematic Reviews
Objective While there has been increasing attention on caring for children following a parent's cancer diagnosis or death, few studies include scalable evidence‐based interventions to facilitate adjustment. The aim of this review was to summarize recent empiri…
Interview Results From a Telehealth Hospice Intervention for Children and Young Adults With Cancer
Background and aims: Surveyed families of children and young adults with cancer who participated in a pilot study of three coordinated telehealth visits (triad of patient/family, hospital clinician, and hospice nurse) during the first month of hospice enrollme…