Published literature
Publications
Published children's palliative care research: browsable, searchable and filterable by the same taxonomy as researchers, groups and guides.
This library is curated by The Siden Research Team as part of the TRENDS in Pediatric Palliative Care newsletter and library. Learn more about TRENDS and The Siden Research Team and subscribe to read their monthly expert commentaries on their website.
Showing 1–16 of 16 publications
Pediatric and Adult Cardiologists' and Respirologists' Referral Practices to Palliative Care
Context: Children and adults with advanced cardiac or respiratory disease may benefit from specialized palliative care (SPC), but there has been little SPC research in this area. Objective(s): To explore pediatric cardiologists' and respirologists' (pediatric …
End-of-Life Care of Hospitalized Children with Advanced Heart Disease
Lee J, et al. J Korean Med Sci. 2020 Feb;35(16):e107. https://doi.org/10.3346/jkms.2020.35.e107
Palliative care?! But this child's not dying: The burgeoning partnership between pediatric cardiology and palliative care
The field of pediatric cardiology has witnessed major changes over the past few decades that have considerably altered patient outcomes, including decreasing mortality rates for many previously untreatable conditions. Despite this, some pediatric cardiology pr…
Parent-Reported Outcomes of Prognostic Communication in Hospitalized Children with Advanced Heart Disease (S762)
Objectives: * Describe a prospective study to evaluate how parents of children with advanced heart disease (AHD) perceive communication about prognosis with their child's physicians. * Describe results from this analysis that found no correlation between lengt…
Patterns of paediatric end-of-life care: A chart review across different care settings in Switzerland
Background: Paediatric end-of-life care is challenging and requires a high level of professional expertise. It is important that healthcare teams have a thorough understanding of paediatric subspecialties and related knowledge of disease-specific aspects of pa…
Pediatric chronic patients at outpatient clinics: A study in a Latin American University Hospital
Objective: To describe the characteristics of children and adolescentes with chronic diseases of outpatient clinics at a tertiary university hospital. Methods: A cross-sectional study was performed with 16,237 patients with chronic diseases followed-up in one …
Training pediatric fellows in palliative care: A comparison of simulation-based training and didactic education
Background: Although palliative care (PC) communication skills can be learned through trial and error, pediatric fellows have few opportunities to practice communication, and learning by doing may be harmful for families. Despite these issues and recommendatio…
Evaluating Hospice and Palliative Medicine Education in Pediatric Training Programs
BACKGROUND: Hospice and Palliative Medicine (HPM) competencies are of growing importance in training general pediatricians and pediatric sub-specialists. The Accreditation Council for Graduate Medical Education (ACGME) emphasized pediatric trainees should unde…
Impact of early palliative care intervention on maternal stress in mothers of infants prenatally diagnosed with single ventricle heart disease: A randomized clinical trial
Background: Children with single ventricle (SV) cardiac defects requiring staged palliation have a high risk of mortality and receive invasive and complex care, resulting in significant maternal stress. In other complex, life-limiting illnesses among children,…
The importance of early involvement of paediatric palliative care for patients with severe congenital heart disease
Growing numbers of patients with severe congenital heart disease (CHD) are surviving into late childhood and beyond. This increasingly complex patient group may experience multiple formidable and precarious interventions, lifelong morbidity and the very real r…
Family caregiving for persons with heart failure at the intersection of heart failure and palliative care: a state-of-the-science review
Many of the 23 million individuals with heart failure (HF) worldwide receive daily, unpaid support from a family member or friend. Although HF and palliative care practice guidelines stipulate that support be provided to family caregivers, the evidence base to…