Published literature
Publications
Published children's palliative care research: browsable, searchable and filterable by the same taxonomy as researchers, groups and guides.
This library is curated by The Siden Research Team as part of the TRENDS in Pediatric Palliative Care newsletter and library. Learn more about TRENDS and The Siden Research Team and subscribe to read their monthly expert commentaries on their website.
Showing 1–23 of 23 publications
Assessing the palliative care needs of children with cancer and their families in tertiary care centres in India: A multicentre observational study
Background: Children with cancer face a significant physical and psychosocial burden, highlighting the need for paediatric palliative care (PPC). Global estimates indicate that over 21 million children require PPC. However, in low- and middle-income countries …
Comparison of early versus late palliative care integration in pediatric onco-critical care: Single-center retrospective study from South India
Background: Children with life-limiting illnesses in onco-critical care often face severe symptoms and complex end-of-life decisions. Early palliative care (PC) may enhance symptom management, quality of life (QOL), and resource utilization. This study aimed t…
Perceived Challenges to Effective Pediatric Palliative Care in India: A Systematic Review
Pediatric palliative care aims to improve the quality of life for children with life-threatening diseases. The requirements and approach to pediatric palliative care differ greatly from adult palliative care. Palliative care has been introduced and grown in In…
Study protocol to develop bereavement care package for the Indian healthcare system to support parents of stillborn babies
Background: India is estimated to have the largest number of stillbirths globally. Although the health system in India has made significant strides in maternal and newborn care, the bereavement needs of the parents’ experiencing stillbirth have not received at…
End of Life Care Practices at a Tertiary Cancer Centre in India: An Observational Study
Purpose: To assess the End of life care (EOLC) practices and the magnitude of futile care in a tertiary cancer center. To find out the barriers in provision of good EOLC in cancer patients. Methods: An observational study was done on 129 patients. Patients wer…
A Dialogue between Hindu and Catholic Perspectives in Taking Care of Newborns at their End-of-Life
Hinduism is considered one of the most ancient religions in the world. Although the technological innovation of modernization has undermined the reliance on their traditions, Hindus may still rely on Hindu Scripture when making decisions. From their standpoint…
An innovative hybrid palliative care fellowship program: empowering pediatricians and enhancing care for children in resource-limited settings
Objective To describe the development and implementation of a 1-year 'Hybrid' Pediatric Palliative Care (PPC) Fellowship, which includes both clinical and online learning to train paediatricians as specialists and leaders in paediatric palliative care in South…
Hospice Care in India-A Pediatrician's Perspective
Hospice care plays a vital role in providing compassionate and holistic support to terminally ill patients and their families. While hospice care has gained recognition and acceptance globally, its implementation and understanding in the context of pediatric p…
Real World Presentation and Treatment Outcomes with a Predominant Induction Chemotherapy Based Approach in Nasopharyngeal Carcinoma: A Sixteen Year Report from a Teaching Hospital in India
Introduction: Nasopharyngeal carcinoma (NPC) is a rare malignancy in India except in north-eastern states. We present our institutional experience of 16 years highlighting management, outcomes, responses and toxicities. Material(s) and Method(s): NPC patients …
Neonatal palliative care practices: an Indian perspective
Background: Neonatal palliative care (NPC) aims to prevent and relieve the suffering of neonates who are not going to recover. Although an integral part of neonatal care, it remains in nascent stages in many parts of the world. Aim(s): To describe neonatologis…
Setting-up a Supportive and Palliative Care Service for Children with Life-threatening Illnesses in Maharashtra -- Children's Palliative Care Project in India
Objectives: To describe the key initiatives that were successful in planning and implementing hospital- and community-based Paediatric Palliative Care (PPC) services designed for a resource-limited setting in Maharashtra, India, in collaboration with DfID. Mat…
Community health workers in palliative care provision in low-income and middle-income countries: a systematic scoping review of the literature
Background: Community health workers (CHWs) are currently deployed in improving access to palliative care in a limited number of low-income or middle-income countries (LMICs). This review therefore aimed to document evidence from LMICs regarding (1) where and …
Exploring learners' perspectives of a pediatric palliative care tele-mentoring and education program (project Echo) in a resource-limited setting
INTRODUCTION/BACKGROUND: More than 98% of children who need palliative care live in low- or middle-income countries where access to palliative care is extremely limited. A lack of palliative care education for health care providers has been identified as a sig…
Identifying the know-do gap in evidence-based neonatal care practices among informal health care providers-a cross-sectional study from Ujjain, India
BACKGROUND: More than a quarter of global neonatal deaths are reported from India, and a large proportion of these deaths are preventable. However, in the absence of robust public health care systems in several states in India, informal health care providers (…
Parents' acceptance and regret about end of life care for children who died due to malignancy
Purpose: To analyse the preference of end of life care place in paediatric oncology patients, and to understand the end of life care needs and regrets among the care givers. Method(s): This was an observational qualitative study. Parents of in-curable paediatr…
End-of-Life Treatments in Pediatric Patients at a Government Tertiary Cancer Center in India
AIM:
The primary objective of this study was to describe demographics and end-of-life treatments of children with cancer at a government tertiary cancer center in India.
METHODS:
A retrospective review was undertaken of medical charts of all children younger …
End-of-Life Care: Consensus Statement by Indian Academy of Pediatrics
JUSTIFICATION: The right to life has been accepted as one of the fundamental rights in our constitution. Resuscitation is a procedure performed for all patients suffering from cardiac or respiratory arrest irrespective of the clinical condition. There are no l…
Palliative care in the neonatal intensive care unit: An Indian
The survival of newborn babies born with various problems has improved