Published literature
Publications
Published children's palliative care research: browsable, searchable and filterable by the same taxonomy as researchers, groups and guides.
This library is curated by The Siden Research Team as part of the TRENDS in Pediatric Palliative Care newsletter and library. Learn more about TRENDS and The Siden Research Team and subscribe to read their monthly expert commentaries on their website.
Showing 1–10 of 10 publications
Examining the relationship between neonatal nurses’ palliative care attitudes and compassion fatigue levels
Background Compassion fatigue may be associated with neonatal intensive care unit (NICU) nurses’ ability to provide quality palliative care. Understanding this relationship may contribute to the development of supportive strategies for neonatal nurses and neon…
“Their suffering also plagues us”: a narrative ethnographic exploration of humanitarian healthcare workers’ moral experiences of providing pediatric palliative care in Cox’s Bazar, Bangladesh
This focused ethnography was conducted between March-August 2021 at the Médecins Sans Frontières (MSF) Goyalmara Mother–Child Hospital in Cox’s Bazar, Bangladesh, which serves the Rohingya refugee and Bangladeshi host community. Data collection involved partic…
Whispers of Comfort: Filipino Pediatric Palliative Nurses’ Insights on Holistic Care at New Hope Foundation, China
Purpose of the Study: This study explored the lived experiences of Filipino pediatric palliative care nurses working at the New Hope Foundation in China. It sought to understand how these nurses deliver holistic care to terminally ill children while managing e…
Can the Ethical Best Practice of Shared Decision-Making lead to Moral Distress?
When healthcare professionals feel constrained from acting in a patient's best interests, moral distress ensues. The resulting negative sequelae of burnout, poor retention rates, and ultimately poor patient care are well recognized across healthcare providers.…
Health professionals' experiences of grief associated with the death of pediatric patients: a qualitative systematic review protocol
REVIEW QUESTION: What are health professionals' experiences of grief associated with the death of pediatric patients in acute or community healthcare settings?