Published literature
Publications
Published children's palliative care research: browsable, searchable and filterable by the same taxonomy as researchers, groups and guides.
This library is curated by The Siden Research Team as part of the TRENDS in Pediatric Palliative Care newsletter and library. Learn more about TRENDS and The Siden Research Team and subscribe to read their monthly expert commentaries on their website.
Showing 151–165 of 165 publications
Research Priorities in Pediatric Palliative Care
OBJECTIVE: To synthesize the perspectives of a broad range of pediatric palliative care (PPC) clinicians and parents, to formulate a consensus on prioritization of the PPC research agenda.
STUDY DESIGN: A 4-round modified Delphi online survey was administered …
The relationship between the nursing environment and delivering culturally sensitive perinatal hospice care
BACKGROUND: Wide variations exist among perinatal hospices, and barriers to perinatal palliative care exist at the healthcare level. Research in the area of culturally sensitive perinatal palliative care has been scarce, a gap which this study addresses.
OBJEC…
Challenges and coping styles of fathers as primary medical caretakers: a multicultural qualitative study.
Research has focused heavily on mother's experiences of children with life-threatening illnesses. In contrast, fathers' experiences, especially among minorities, are scarcely discussed. This study examined the experiences of 15 fathers as primary medical caret…
End- of- life decisions and minors: do minors have the right to refuse life preserving medical treatment? A comparative study
The principles of the right to informed consent and informed refusal are quite clear for competent adult patients. The right of a competent adult patient to give his informed consent before medical treatment can be started, is a patients' right that is recogni…
Race does not influence do-not-resuscitate status or the number or timing of end-of-life care discussions at a pediatric oncology referral center
BACKGROUND: End-of-life care (EOLC) discussions and decisions are common in pediatric oncology. Interracial differences have been identified in adult EOLC preferences, but the relation of race to EOLC in pediatric oncology has not been reported. We assessed wh…
Transforming the Pediatric Experience: The Story of Child Life
During the past century, child life programming has evolved into a standard of care for children experiencing life's most challenging events.
Gender Differences in Depressive Symptoms Following Child Death in Later
Objectives: This study examined short- and long-term psychological adjustment to parental bereavement in later life for mothers and fathers.
Methods: Using 9 waves of data from the United States (1998-2014 Health and Retirement Study), I estimated trajectorie…
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