Published literature

Publications

Published children's palliative care research: browsable, searchable and filterable by the same taxonomy as researchers, groups and guides.

This library is curated by The Siden Research Team as part of the TRENDS in Pediatric Palliative Care newsletter and library. Learn more about TRENDS and The Siden Research Team and subscribe to read their monthly expert commentaries on their website.

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Showing 1–5 of 5 publications

Navigating the landscape of paediatric haematological malignancies: a qualitative exploration of caregivers' experiences and palliative care integration in Pakistan

Shariq S, Sultan A, Bukhari S, Zehra N, Fadoo Z, Zaheer H, Resham S · BMC palliative care · 2026 · DOI: 10.1186/s12904-026-02060-w

Eastern Mediterranean Pakistan Haematology Oncology Parents/Caregivers Qualitative

Patterns of Pain and Pain Management in Pediatric Oncology and Hematology Patients: Experience from a Tertiary Care Center in Pakistan

Zafar H, Srirama S, ul Ain R, Sudhir A, Rayala S, Doherty M, Pinkerton R · Pediatric Hematology Oncology Journal · 2026 · DOI: 10.1016/j.phoj.2026.100830

Abstract: Background Pain is one of the most distressing symptoms in children with malignancies, yet pediatric palliative care (PPC) services in low- and middle-income countries (LMICs) remain underdeveloped. In Pakistan, gaps in physician training, limited op…

Eastern Mediterranean Pakistan Controlled Medicines Haematology Oncology Pain & symptom management Quantitative

Fifteen years of shared care for paediatric oncology, haematology and palliative patients across Queensland: The role of Regional Case Managers

Slater P, Hastings Y, Nicholson J, Noyes M, Benitez L, Pollock K, Peacock R, Cox A, Gunning R, Caris K, Petersen D, Henry C, Spanner R, Beckett K, Chisholm C · The Australian journal of rural health · 2023 · DOI: 10.1111/ajr.12958

Western Pacific Australia Care Models Haematology Oncology Mixed methods

Family Satisfaction with Symptom Management Practices and Child Comfort During Pediatric Hematopoietic Stem Cell Transplant (TH320C)

Ullrich C, Levine D, Li A, Ma C, Wolfe J, Holder R · Journal of Pain and Symptom Management · 2018

The Americas United States of America Haematology Pain & symptom management Parents/Caregivers

"We just follow the patients' lead": Healthcare professional perspectives on the involvement of teenagers with cancer in decision making

Day E, Jones L, Langner R, Stirling L, Hough R, Bluebond-Langner M · Pediatr Blood Cancer · 2017 · DOI: 10.1002/pbc.26898

PURPOSE: We report on an in-depth interview and participant observation study that uses data from multiple sources to determine how the involvement of teenagers with leukaemia is understood and enacted in healthcare. In this article, we investigate healthcare …

Decision-making Haematology