Published literature
Publications
Published children's palliative care research: browsable, searchable and filterable by the same taxonomy as researchers, groups and guides.
This library is curated by The Siden Research Team as part of the TRENDS in Pediatric Palliative Care newsletter and library. Learn more about TRENDS and The Siden Research Team and subscribe to read their monthly expert commentaries on their website.
Showing 1–9 of 9 publications
Patterns of Pain and Pain Management in Pediatric Oncology and Hematology Patients: Experience from a Tertiary Care Center in Pakistan
Abstract: Background Pain is one of the most distressing symptoms in children with malignancies, yet pediatric palliative care (PPC) services in low- and middle-income countries (LMICs) remain underdeveloped. In Pakistan, gaps in physician training, limited op…
Nurturing hope: pioneering paediatric palliative care in Pakistan
My colleagues often say that seeing me (Resham) standing beside a patient's bed or lingering outside a child's room feels like a sign that the malik-ul-maut, or the angel of death, is near. For a long time, most health-care professionals perceived my role in t…
Experiences of Mothers Who Relinquished Their Child for Adoption in Pakistan: A Qualitative Study
The literature suggests long-term consequences and lack of support for birthmothers following relinquishment of their child for adoption (Memarnia in Listening to the experience of birth mothers whose children have been taken into care or adopted, 2014). But t…
Impact of an outpatient palliative care consultation and symptom clusters in terminal patients at a tertiary care center in Pakistan
Background: Patients with terminal diseases may benefit physically and psychosocially from an outpatient palliative care visit. Palliative care services are limited in Pakistan. An improved understanding of the symptom clusters present in our population is nee…
Implementation of evidence-based psychosocial care in six pediatric oncology units across Pakistan
BACKGROUND: Despite rising childhood cancer incidence, low-middle income countries often fall short of quality resources to prioritize and develop psycho-oncology services. Patients and families suffering from cancer are subject to great psychological distress…
Reiki for alleviation of physical and psychological distress in end of life care in children with cancer in Pakistan
Background/Objectives: End of life care has been seen as a field fraught with challenges and according to the American Psychological Association, much research is required to make this part of life easy on the children dying from cancer and the caregivers who …