Published literature
Publications
Published children's palliative care research: browsable, searchable and filterable by the same taxonomy as researchers, groups and guides.
This library is curated by The Siden Research Team as part of the TRENDS in Pediatric Palliative Care newsletter and library. Learn more about TRENDS and The Siden Research Team and subscribe to read their monthly expert commentaries on their website.
Showing 1–10 of 10 publications
Improved Quality of Life in Children and Families Following Enrollment in a Pediatric Palliative Care Program: A Prospective Cohort Study
Background/Objectives: Pediatric palliative care seeks to relieve suffering and improve the quality of life of children with severe conditions and their families. This prospective cohort study assessed changes in quality of life following enrollment in a pedia…
Silent wounds: violence and adverse experiences in parents caring for terminally ill children in palliative care
BACKGROUND: Primary caregivers of paediatric palliative care patients-mostly women-are disproportionately exposed to adverse events and violence, both directly related to the experience of disease and to other stressful life events. These experiences have been…
Comparing the Need and Development of Pediatric Palliative Care in Mexico: A Geographical Analysis
CONTEXT: The Global Atlas of Palliative Care (GAPC) ranked Mexico's palliative care services at a preliminary integration stage into mainstream healthcare services. However, this data does not reflect pediatric palliative care (PPC) development.
OBJECTIVES: To…
Exploring critical factors in pediatric palliative care in Latin America: A scoping review
This scoping review aimed to provide an overview of the current landscape of pediatric palliative care in Latin America, including policies, regulations, available resources, challenges, barriers, and evidence-based recommendations. We conducted a comprehensiv…
Pilgrimage in pediatric palliative care: The journey of caregivers
Admission of terminally ill patients into pediatric palliative care remains a challenge in Mexico and Latin America, despite the multiple benefits of early transfer. In this context the trajectories in search of health care of patients and caregivers have not …
Vulnerability in women primary caregivers of children in palliative care due to intimate partner violence in a pediatric hospital in Mexico
BACKGROUND: Women are the primary caregivers of children in palliative care. Research has shown that the presence of intimate partner violence at home exacerbates the vulnerability of the caregiver. Current statistics indicate a high prevalence of violence in …
Factors Associated With Knowledge and Comfort Providing Palliative Care: A Survey of Pediatricians in Mexico
BACKGROUND:: Lack of education and training in palliative care has been described to be one of the most important barriers to pediatric palliative care implementation. OBJECTIVE:: To examine what factors determine the degree of knowledge and level of comfort M…
Place of death of children with complex chronic conditions: cross-national study of 11 countries
Cross-national understanding of place of death is crucial for health service systems for their provision of efficient and equal access to paediatric palliative care. The objectives of this population-level study were to examine where children with complex chro…
Palliative care in children with cancer. Experience of a hospital in the center of Mexico
Background/Objectives: To report the experience in palliative care given to our paediatric patients with cancer. Design/Methods: We included in a cohort, patients of Pediatric Oncology of the HMI service that its palliative care. We evaluate clinical and demog…
End-of-life decisions in perinatal care: A view from health-care providers in Mexico
OBJECTIVE: To examine the opinions of a perinatal health team regarding decisions related to late termination of pregnancy and severely ill newborns. MATERIALS AND METHODS: An anonymous questionnaire was administered to physicians, social workers, and nurses i…