Published literature
Publications
Published children's palliative care research: browsable, searchable and filterable by the same taxonomy as researchers, groups and guides.
This library is curated by The Siden Research Team as part of the TRENDS in Pediatric Palliative Care newsletter and library. Learn more about TRENDS and The Siden Research Team and subscribe to read their monthly expert commentaries on their website.
Showing 1–13 of 13 publications
Palliative Care Service Needs of Children with Complex Chronic Conditions in a Hospital-to-Home Transition Unit: Insights from an Underserved Population
Introduction: Children with complex chronic conditions (CCC) represent an increasingly prevalent and vulnerable group in pediatric care, accounting for a substantial proportion of hospital admissions and health care expenditures worldwide. These children frequ…
Pediatric Palliative care: Evaluation of knowledge, experience and confidence among physicians in a university outpatient setting
Background Pediatric Palliative Care (PPC) is essential for improving the quality of life of children with life-threatening or life-limiting conditions and their families. Despite its growing relevance, PPC remains underexplored in medical education and clinic…
Exploring critical factors in pediatric palliative care in Latin America: A scoping review
This scoping review aimed to provide an overview of the current landscape of pediatric palliative care in Latin America, including policies, regulations, available resources, challenges, barriers, and evidence-based recommendations. We conducted a comprehensiv…
End-of-life care in Brazilian pediatric intensive care units: challenges and opportunities
Pediatric Critical Care Medicine has evolved drastically as a specialty since its inception more than five decades ago.1 Advances in technology and medical interventions have led to a substantial reduction in mortality rates, which are now in the single digits…
Listening to the Residents: The Perception of Pediatric Palliative Care Education in a Residency Program in Brazil
Background: In Brazil, a relevant portion and children suffer without receiving adequate control of their symptoms. Failures in pediatrician training may contribute to this problem. Objective: The goal was to characterize the educational failures perceived by …
Pediatric palliative medicine in Brazil: an ethical reflection of medical practice
The ethical barriers involved in the practice of pediatric palliative medicine remain high and challenging. In terms of medical ethics, attention should be paid to culture, religion and family values, in order to promote adequate care for caregivers, even in c…
Physician Perceptions of and Barriers to Pediatric Palliative Care for Children with Cancer in Brazil
PURPOSEEarly integration of pediatric palliative care (PPC) for children with cancer is critical to improving the quality of life of both the patient and family. Understanding physician perceptions of palliative care and perceived barriers to early integration…
Overview of perinatal palliative care in Brazil
Significant attention to palliative care in terminally ill patients has only been effective in Brazil since the year 2000, although there have been isolated actions since the 1980s. When the case involves fetuses or neonates unable to cure, communication and c…
Brazilian Neonatal Nurses' Palliative Care Experiences
The purpose of palliative care (PC) is to minimize suffering and improve quality of life. Although PC has been well studied, the experience of neonatal intensive care unit (NICU) nurses in Brazil, where little PC training is provided, requires further investig…