Published literature

Publications

Published children's palliative care research: browsable, searchable and filterable by the same taxonomy as researchers, groups and guides.

This library is curated by The Siden Research Team as part of the TRENDS in Pediatric Palliative Care newsletter and library. Learn more about TRENDS and The Siden Research Team and subscribe to read their monthly expert commentaries on their website.

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Guidance

Showing 1–3 of 3 publications

Updated perinatal palliative standards emphasise choice and bereavement support

Evans N · Nursing Children and Young People · 2017 · DOI: 10.7748/ncyp.29.5.8.s8

Europe United Kingdom Grief & bereavement Peri/neonatal palliative care Standards

Listening to parents: The role of symptom perception in pediatric palliative home care

Vollenbroich R, Borasio G, Duroux A, Grasser M, Brandstatter M, Fuhrer M · Palliative & supportive care · 2016 · DOI: 10.1017/S1478951515000462

RESULTS: Thirty-eight parent dyads participated (return rate 84%; 35% oncological disorders). According to parental report, dyspnea (61%) and pain (58%) were the dominant symptoms with an overall high symptom load (83%). Pain, agitation, and seizures could be …

Oncology Pain & symptom management Standards Quantitative

Paediatric palliative care in Denmark should be strengthened

Jespersen B, Clausen N, Sjogren P · Ugeskrift for laeger · 2014

Paediatric palliative care is the total care for the child's body, mind and spirit, and involves support to the family. It begins when a life-threatening disease is diagnosed and depends on an interdisciplinary team approach. In 2013, 295 children under the ag…

Denmark Standards