Publication
Regional paediatric palliative care network model improves the quality of life of children on long-term ventilation at home
Rusalen F, Agosto C, Brugnaro L, Benini F · Acta Paediatrica (Oslo, Norway: 1992) · 2017
In the last 20 years, the prevalence of children on domiciliary long-term ventilation (LTV) has increased in many countries, and in Italy it is now 4.3 of the 100 000. The complex management of these patients’ conditions requires highly specialised expertise that is provided by integrated multidisciplinary teams and calls for solutions from a number of institutional agencies. The global care offered to these patients by paediatric palliative care (PPC) also embraces their social needs. We present a retrospective cross-sectional analysis of the regional database of the Veneto Regional Center for PPC in north-east Italy, which organises, coordinates and supports the PCC network for the region. It guarantees 24-hours-a-day assistance by a multidisciplinary team that responds to the clinical, psychological, organisational, social and spiritual needs of the child and family.
Synced from the TRENDS in Pediatric Palliative Care Zotero library, curated by The Siden Research Team. ICPCN does not host or verify the full text.