Published literature

Publications

Published children's palliative care research: browsable, searchable and filterable by the same taxonomy as researchers, groups and guides.

This library is curated by The Siden Research Team as part of the TRENDS in Pediatric Palliative Care newsletter and library. Learn more about TRENDS and The Siden Research Team and subscribe to read their monthly expert commentaries on their website.

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Showing 1–5 of 5 publications

Children's palliative care in Ghana: a situational analysis
Downing J, Adongo E, Kuma-Aboagye P, Renner L, Salifu N, Paintsil V, Odiko-Ollennu W, Daniels A, Chambers L, Sekyere B · BMC Palliative Care · 2026 · DOI: 10.1186/s12904-026-02053-9
Provider Perceptions on Bereavement Following Newborn Death: A Qualitative study from Ethiopia and Ghana
Rent S, Bakari A, Deribessa S, Abayneh M, Shayo A, Bockarie Y, Moyer C, Kukora S · The Journal of Pediatrics · 2022 · DOI: 10.1016/j.jpeds.2022.10.011
Objective To explore how clinicians in low- and middle-income countries engage and support parents following newborn death. Study Design Qualitative interviews of 40 neonatal clinicians with diverse training were conducted in Addis Ababa, Ethiopia and Kumasi, …
Integrating palliative care into the care of paediatric patients at a referral hospital in ghana
Paintsil V, Ossei-Sekyere B, Osei-Tutu L, Asiamah C · Pediatric Blood and Cancer · 2018 · DOI: 10.1002/pbc.27455
Background/Objectives: Caring for children with life threatening diseases can be difficult and also it could be compounded by insufficient training and competence in symptom management and communication skills by staff members. This affects the quality of care…
"They Say I Should not Think About It:": A Qualitative Study Exploring the Experience of Infant Loss for Bereaved Mothers in Kumasi, Ghana
Meyer A, Opoku C, Gold K · Omega (Westport) · 2018 · DOI: 10.1177/0030222816629165
Despite the high rate of infant mortality in Ghana, few studies have explored the maternal experience of infant loss and the perinatal grieving process. As part of a larger study that interviewed 153 mothers with a sick infant, this 1-year follow-up study rein…
Addressing the continuum of maternal and newborn care in Ghana: implications for policy and practice
Engmann C, Hodgson A, Aborigo R, Adongo P, Moyer C · Health Policy Plan. · 2016
Although the past decade has brought global reductions in maternal, infant and child mortality, many low-resource settings have failed to make significant gains relative to their high-income counterparts. In Ghana, nearly 50% of under-five mortality in 2014 co…