Publication
Bereaved Parents' Perceptions of Infant Suffering in the NICU
Fortney C, Baughcum A, Moscato E, Winning A, Keim M, Gerhardt C · Journal of pain and symptom management. · 2019
BACKGROUND: It is challenging to provide supportive intensive care to infants in the NICU, giving them every chance for survival, while also trying to minimize suffering for both the infant and parents. Parents who believe their infant is suffering may alter treatment goals based on their perceptions, however it is unknown how parents come to believe that their infant may be suffering. AIM: To examine bereaved parents' perceptions of infant suffering in the NICU DESIGN: Parents completed a qualitative interview exploring their perceptions of the level of suffering that their infant experienced at the end of life. SETTING/PARTICIPANTS: Parents whose infant died in a large, Midwestern level IV regional referral NICU from July 2009-July 2014 were invited to participate. 30 mothers and 16 fathers from 31 families (31/249) participated in telephone interviews between 3 months and 5 years after their infant's death.
Synced from the TRENDS in Pediatric Palliative Care Zotero library, curated by The Siden Research Team. ICPCN does not host or verify the full text.