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Challenges in Pediatric Advance Care Discussions Between Health Care Professionals and Parents of Children with a Life-Limiting Condition: A Qualitative Pilot Study

Hein K, Monz A, Daxer M, Heitkamp N, Knochel K, Jox R, Borasio G, Fuhrer M · Journal of Pain and Symptom Management · 2018

CountryGermany
Clinical focusAdvance Care Planning

Objectives: Research has shown that advance care planning concepts for adults need to be revised and adapted to be applicable to pediatric situations. A consistent approach to pediatric advance care planning (pACP) is still missing. The study aimed to (1) identify challenges during pediatric advance care discussions and (2) explore the perception of participants about pACP with the final goal of (3) developing a pACP conversation guideline.

DOI
10.1016/j.jpainsymman.2018.10.419

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Synced from the TRENDS in Pediatric Palliative Care Zotero library, curated by The Siden Research Team. ICPCN does not host or verify the full text.