Publication
A RETROSPECTIVE AUDIT FOR PRE-HOSPITAL RESPECT DOCUMENTATION FOR CHILDREN WITH COMPLEX LIFE LIMITING NEURO-DISABILITY ADMITTED TO PAEDIATRIC INTENSIVE CARE UNIT
Varma R, Mohamed M, Kayani R · Archives of Disease in Childhood · 2024
Objectives As per NICE guidelines [NG 61], children and young people with life limiting conditions and their carers or parents should have enough time and opportunities for discussions about difficult decisions around end-of-life care. A retrospective audit of all children with complex life limiting neurodisabilities who died in the paediatric intensive care unit was carried out to assess if they were: a) Known to any other team/hospice care b) Have documented RESPECT form or end-of-life care discussion. Methods A retrospective review of medical records was done of all children who died in the paediatric intensive care unit between May 2014 to Sept 2022. Children who died in PICU but did not have any pre-existing life limiting neuro-disability and children who had cancer were excluded. Results Only 2 out of 33 eligible patients (6%) had end-of-life care discussion prior to admission to PICU. Another 1 patient was known to the palliative care team but did not have any documented end-of-life care plan. Conclusion Children with pre-existing life limiting neuro-disabilities and their families are not getting enough time and opportunities for discussions about difficult decisions around end-of-life care.
Synced from the TRENDS in Pediatric Palliative Care Zotero library, curated by The Siden Research Team. ICPCN does not host or verify the full text.