Publication
Measuring a Patient Reported Outcome: A Pediatric Palliative Care Nationwide QI Collaborative
Autrey A, Thienprayoon R, Jones E · Journal of Pain and Symptom Management · 2025
Introduction: Pediatric palliative care (PPC) aims to enhance the quality of life of children and families facing serious illness. Subsequently, patient reported outcomes (PRO) are crucial; however, development of valid, useful tools for our field has faced several population-specific challenges. In 2022, the Pediatric Palliative Improvement Network (PPIN) developed a collaborative project to increase the assessment of patient and family experiences with PPC services, including one of the two patient reported palliative care quality measures identified by AAHPM in 2021. Objective: By December 31, 2022, our collaborative aimed for: 10 sites contributing data, 50% of eligible PPC patients’ experiences being assessed, and 25% response rate.
Synced from the TRENDS in Pediatric Palliative Care Zotero library, curated by The Siden Research Team. ICPCN does not host or verify the full text.