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From Fear to Confidence: Changing Providers' Attitudes about Pediatric Palliative and Hospice Care

Vesel T, Beveridge C · Journal of Pain and Symptom Management · 2018

CONTEXT: Children have limited access to hospice care: few existing hospice programs have dedicated pediatric teams, and adult hospice providers feel inadequately trained to care for children. OBJECTIVES: The aim of this study is to increase access to pediatric hospice care by empowering adult hospice providers to care for children through a comprehensive education program. Education empowers providers by changing their attitudes from inadequacy to confidence. METHODS: The authors developed a two-day education program to train interdisciplinary teams of adult hospice providers in pediatric care. The curriculum consists of thirteen modules to improve participants' knowledge, skills, and attitudes. Ninety-three providers across the US learned via multiple teaching methods including lectures, role-plays by professional actors, interviews of bereaved parents, and self-reflections. Learning was evaluated with assessments before, immediately after, and 6-months following the program. Responses were compared using a one-sided analysis of variation (ANOVA) with a significance level of alpha<0.05. RESULTS: Participants improved their knowledge in twelve of thirteen modules. Self-reported confidence levels with pediatric care improved significantly in all thirteen modules (p<0.05). After this program, 79% of providers reported feeling better prepared to care for pediatric hospice patients. Qualitative data reinforced that learners felt more prepared to care for pediatric patients. CONCLUSION: A two-day, high intensity low cost community based education program can improve adult providers' knowledge of and skill level with pediatric care, leading to a change in attitude from fear to confidence. This model has the potential to increase access to pediatric hospice care as it utilizes existing adult hospice infrastructure.

DOI
10.1016/j.jpainsymman.2018.03.019

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Synced from the TRENDS in Pediatric Palliative Care Zotero library, curated by The Siden Research Team. ICPCN does not host or verify the full text.

From Fear to Confidence: Changing Providers' Attitudes about Pediatric Palliative and Hospice Care · Publications · ICPCN Research Hub