Publication
Challenges, Benefits, and Future Directions of Pediatric Home-Based End-of-Life Care: A Qualitative Study
Jaaniste T, Helyar M, Eamens M, Smeal T, Coombs S, Mherekumombe M · Journal of palliative care · 2025
Objectives Pediatric end-of-life (EOL) care at home is often provided by community palliative care (CPC) nurses who are not specialist pediatric service providers. This study explores the challenges, benefits, and future directions of home-based EOL care as perceived by CPC nurses in New South Wales (NSW), Australia. Methods Eleven CPC nurses participated in a semi-structured interview to elicit information about their attitudes and experiences regarding their work in providing community-based EOL care to children. Reflexive thematic analysis was used to explore themes regarding the benefits, challenges and their thoughts on future directions regarding home-based EOL care. Results Challenges identified by CPC nurses included resource access, complexity of pediatric, models of care, and family psychological factors. Benefits included patient and family autonomy, home comforts and the nurses' sense of satisfaction. CPC nurses suggested the need for increased education, support and collaboration. Conclusion Areas of possible clinical and organizational improvements are discussed, including more pediatric training and experience for CPC nurses.
Synced from the TRENDS in Pediatric Palliative Care Zotero library, curated by The Siden Research Team. ICPCN does not host or verify the full text.