Published literature
Publications
Published children's palliative care research: browsable, searchable and filterable by the same taxonomy as researchers, groups and guides.
This library is curated by The Siden Research Team as part of the TRENDS in Pediatric Palliative Care newsletter and library. Learn more about TRENDS and The Siden Research Team and subscribe to read their monthly expert commentaries on their website.
Showing 1–8 of 8 publications
Exploring spirituality, religion and life philosophy among parents of children receiving palliative care: a qualitative study
Background: Few studies have examined the spiritual environment of parents of children receiving palliative care in Southern European countries, which are mostly characterized by secularization (or the abandonment of traditional religiosity) and an increase of…
Nurses' knowledge of paediatric palliative care in a children's hospital
BACKGROUND: Effective training of health professionals is essential to end-of-life care. AIMS: To explore the level of knowledge on paediatric palliative care (PPC) of nurses in a children's monographic hospital.
METHOD(S): Cross-sectional observational analyt…
Suffering in children and adolescents in paediatric palliative care in Spain: Psychometric properties of the qESNA scale
Objective: To analyze the psychometric properties of the qESNA scale and its usefulness to assess the suffering of paediatric patients with life-limiting and/or life-threatening diseases (children with LLTC) in clinical practice.
Method(s): Cross-sectional and…
End of life in patients under the care of paediatric palliative care teams. Multicentre observational study
Introduction: Around 2000 children and adolescents die each year in Spain, however, we know little about the particularities of deaths in paediatrics. The purpose of this study is to document the characteristics of patients who die in the care of paediatric pa…
A grounded theory study of the perceptions and meanings associated with gastrostomies among parents of children with palliative needs
BACKGROUND:: There is few literature on the difficulties and different meanings of gastrostomy tubes (GST) for parents of children with palliative needs, and what specific palliative care teams contribute to this process. AIM:: To explore the process of inform…
The impact of home-based physical rehabilitation program on parents' experience with children in palliative care: a qualitative study
BACKGROUND: Pediatric palliative care programs aim to improve the quality of life of children with severe life-threatening illnesses, and that of their families. Although rehabilitation and physical therapy provides a valuable tool for the control of symptoms,…
Mechanical ventilation in children with life-limiting conditions
Background: Respiratory insufficiency in children with life-limiting and life-threatening conditions is common, it has a lasting impact, yet there is a paucity of evidence to guide clinicians in its management with home support. Objectives: Our aim was to revi…