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Conflicting realities experienced by children with life-limiting and life-threatening conditions when transitioning to adult health services

Noyes J, Pritchard S, Pritchard A, Bennett V, Rees S · Journal of advanced nursing · 2018

AIMS: The aim of this study was to report a secondary qualitative analysis exploring the cultural and practical differences that young people and parents experience when transitioning from children's to adult services. BACKGROUND: Despite two decades of research and quality improvement initiatives, young people with life-limiting and life-threatening conditions still find transition unsatisfactory. DESIGN: Secondary analysis: 77 qualitative interviews with children and young people (20), parents (35), siblings (1), professionals (21).

DOI
10.1111/jan.13811

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Synced from the TRENDS in Pediatric Palliative Care Zotero library, curated by The Siden Research Team. ICPCN does not host or verify the full text.