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How Latine Families Navigate Pediatric Loss Amid Broken Systems: A Qualitative Study With Caregivers and Providers Using Liberation Psychology

Buzelli P, Oyesanya T, Aguilar A, Gonzalez-Guarda R · Advances in Nursing Science · 2026

Clinical focusGrief & bereavement
MethodologyQualitative

This study explored the challenges and strengths shaping Latine families’ experiences of pediatric loss in the United States context. Eighteen semistructured interviews with healthcare providers (n = 7) and bereaved Latine caregivers (n = 11) were carried out using an integrated qualitative descriptive and Liberation Psychology approach. Four themes emerged that are heavily shaped by individual and contextual factors: (1) Unsupportive and hegemonic systems, (2) caregiver and provider discordance regarding end-of-life care, (3) caregiver identity transcendence in the “natural distress of grief, ” and (4) supportive networks and their limitations. Results highlight sociocultural realities that inform needed structural, policy, and practice changes.

DOI
10.1097/ANS.0000000000000690

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Synced from the TRENDS in Pediatric Palliative Care Zotero library, curated by The Siden Research Team. ICPCN does not host or verify the full text.