Publication
Pediatric hematology-oncology palliative care in Ile-de-France area. [French]
Guillon M, Gioia M, Nisenbaum N, Gaspar N, Lescoeur B, Orbach D, Petit A, Michon J, Pellegrino B, Auvrignon A · Revue d'Oncologie Hematologie Pediatrique · 2016
Purpose. ' The aim was to assess the need for palliative care by describing the pathway of care for children during their last three months of life treated for a cancer or hematology disease in Paris area and who died in 2010. This work was conducted by the Reseau d'Ile-de-France d'hematologie et oncologie pediatrique ([RIFHOP], pediatric oncology network) and Equipe regionale ressource en soins palliatifs pediatriques en Ile-de-France ([PALIPED], palliative care team). Methods. ' This is a retrospective multicentric review from medical records of 68children. Results. ' Palliative care decisions were retrospectively found in medical charts during a multidisciplinary discussion in 70% of cases, and non-resuscitation decisions was available in 40%. Children in palliative care died mainly in the hospital (78.5%), less often at home (21.5%). The initial choice of death location was respected in 60% of cases. During the end of life period, 80% of children received morphine, 91 % steroids, 21 % chemotherapy, and 53% antibiotics; 47% had blood transfusion and 57% were sedated at the very end. Conclusion. ' This retrospective study provides a detailed description of the course of care of children in palliative setting followed in oncology or hematology in Ile-de-France during the last three months of life. The development of non-drug means comfort, the pursuit of certain invasive procedures or certain treatments in the last week of life, the place of end of life or the city-hospital coordination are all working axis highlighted by this study.
Synced from the TRENDS in Pediatric Palliative Care Zotero library, curated by The Siden Research Team. ICPCN does not host or verify the full text.