Publication
“We are running on the fumes of goodwill” Professionals’ experiences of delivering 24/7 end-of-life care to children and their families: a qualitative study
Barrett L, Fraser L, Ziegler L, Jarvis S, Picton S, Hackett J · BMC Palliative Care · 2025
Clinical focusGrief & bereavement
MethodologyQualitative
Despite recent improvements, there is still stark inequity in the funding and provision of 24/7 end-of-life care for children, resulting in many families not receiving the support they need. To inform, plan and implement service changes it is important to take account of what works in current contexts and existing models of care, and to learn how professionals ‘on the ground’ are currently experiencing 24/7 care delivery.
Synced from the TRENDS in Pediatric Palliative Care Zotero library, curated by The Siden Research Team. ICPCN does not host or verify the full text.