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Parents of children of life limiting illness in pediatric advance care planning: a Meta-synthesis of qualitative research

Wang J, Liu R, Li Y, Dai J, Yan H, Zhao M · Chinese Journal of Practical Nursing · 2025

Objective To integrate qualitative studies on parents' cognition and experience of pediatric advance care planning (pACP), for providing reference of pACP research and practice. Methods The relevant qualitative studies about cognition and experience of parents of life-limiting-illness children in pACP in PubMed, Cochrane Library, Web of Science, Embase, CINAHL, ProQuest, CNKI, Wanfang database, VIP database and SinoMed were searched by computer. The search period was from the inception of the database to September 20, 2024. Joanna Briggs Institute Critical Appraisal Tool for qualitative studies in Australia was used to evaluate the quality of included studies, and Meta-synthesis was used to summarize and integrate results. Results A total of 10 articles were included, 35 research results were extracted, and 9 categories were summarized, namely parents' psychological coping styles towards pACP, influencing factors of participation, parents lack multiple support, and problems of doctor-patient communication. Conclusions The implementation of pACP is affected by personal, disease and medical factors, which faces dilemmas and challenges of communication and support. Healthcare staff should provide decision-making support and psychological intervention, strengthen education of death and pACP, establish doctor-patient trust relationship, create a supportive environment, and adopt digital and structured communication intervention to improve the implementation of pACP.Copyright 2025, Chinese Medical Association

DOI
10.3760/cma.j.cn211501-20241112-03109

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Synced from the TRENDS in Pediatric Palliative Care Zotero library, curated by The Siden Research Team. ICPCN does not host or verify the full text.